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DUK10106973_045
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins on his 100th day in Great Ormond Street Hospital. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689800
(c) Dukas -
DUK10106973_044
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins in Hospital when he was born in 2017. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689782
(c) Dukas -
DUK10106973_043
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins in Hospital when he was born in 2017. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689780
(c) Dukas -
DUK10106973_042
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Freddie Mason-Perkins (19 months) at his home in Northampton. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689789
(c) Dukas -
DUK10106973_041
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Carlie Perkins (34) from Northampton with son Freddie Mason-Perkins (19 months) at home in Northampton. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689797
(c) Dukas -
DUK10106973_040
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Freddie Mason-Perkins (19 months) at his home in Northampton. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689798
(c) Dukas -
DUK10106973_039
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins in Hospital when he was born in 2017. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689788
(c) Dukas -
DUK10106973_038
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins in Hospital when he was born in 2017. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689787
(c) Dukas -
DUK10106973_037
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins in Hospital when he was born in 2017. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689786
(c) Dukas -
DUK10106973_036
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins in Hospital when he was born in 2017. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689785
(c) Dukas -
DUK10106973_035
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins in Hospital when he was born in 2017. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689784
(c) Dukas -
DUK10106973_034
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins in Hospital when he was born in 2017. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689783
(c) Dukas -
DUK10106973_033
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins in Hospital when he was born in 2017. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689781
(c) Dukas -
DUK10106973_032
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Carlie Perkins with her son Freddie Mason-Perkins who has a rare genetic condition that prevents him from going outside as the light will burn his skin. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689794
(c) Dukas -
DUK10106973_031
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Carlie Perkins (34) from Northampton with son Freddie Mason-Perkins (19 months) at home in Northampton. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689790
(c) Dukas -
DUK10106973_030
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Perkins and family at Great Ormond Street Hospital on Christmas day. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689792
(c) Dukas -
DUK10106973_029
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins burt by the light from going outside before the family found out about his condition. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689791
(c) Dukas -
DUK10106973_028
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins burt by the light from going outside before the family found out about his condition. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689805
(c) Dukas -
DUK10106973_027
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins in Hospital when he was born in 2017. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689804
(c) Dukas -
DUK10106973_026
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect Freddie Mason-Perkins first Birthday with his family at Great Ormond Street Hospital. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689803
(c) Dukas -
DUK10106973_025
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins burt by the light from going outside before the family found out about his condition. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689802
(c) Dukas -
DUK10106973_024
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Carlie Perkins with her son Freddie Mason-Perkins who has a rare genetic condition that prevents him from going outside as the light will burn his skin. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689799
(c) Dukas -
DUK10106973_023
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins in Great Ormond Street Hospital on Christmas day. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689812
(c) Dukas -
DUK10106973_022
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins burt by the light from going outside before the family found out about his condition. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689808
(c) Dukas -
DUK10106973_021
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Carlie Perkins with her son Freddie Mason-Perkins who has a rare genetic condition that prevents him from going outside as the light will burn his skin. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689807
(c) Dukas -
DUK10106973_020
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Carlie Perkins (34) from Northampton with son Freddie Mason-Perkins (19 months) at home in Northampton. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689811
(c) Dukas -
DUK10106973_019
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Carlie Perkins with her son Freddie Mason-Perkins who has a rare genetic condition that prevents him from going outside as the light will burn his skin. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689810
(c) Dukas -
DUK10106973_018
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins on his first birthday at Great Ormond Street Hospital with his sister Ella Perkins age 11. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689809
(c) Dukas -
DUK10106973_017
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Freddie Mason-Perkins (19 months) at his home in Northampton. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689801
(c) Dukas -
DUK10106973_016
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Carlie Perkins (34) from Northampton with son Freddie Mason-Perkins (19 months) at home in Northampton. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689796
(c) Dukas -
DUK10106973_015
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Carlie Perkins (34) from Northampton with son Freddie Mason-Perkins (19 months) at home in Northampton. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689795
(c) Dukas -
DUK10106973_014
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Carlie Perkins age 34 takes son Freddie Masons-Perkins age 19 months out in his pushchair that has a special cover to prevent Freddie from being in the light. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689793
(c) Dukas -
DUK10106973_013
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins burt by the light from going outside before the family found out about his condition. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689817
(c) Dukas -
DUK10106973_012
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins in Hospital when he was born in 2017. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689816
(c) Dukas -
DUK10106973_011
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Carlie Perkins (34) from Northampton with son Freddie Mason-Perkins (19 months) at home in Northampton. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689814
(c) Dukas -
DUK10106973_010
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Carlie Perkins (34) from Northampton with son Freddie Mason-Perkins (19 months) at home in Northampton. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689818
(c) Dukas -
DUK10106973_009
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins in Hospital when he was born in 2017. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689820
(c) Dukas -
DUK10106973_008
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Freddie Mason-Perkins (19 months) at his home in Northampton. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689815
(c) Dukas -
DUK10106973_007
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Carlie Perkins (34) from Northampton with son Freddie Mason-Perkins (19 months) at home in Northampton. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689813
(c) Dukas -
DUK10106973_006
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Freddie Mason-Perkins in Hospital when he was born in 2017. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689819
(c) Dukas -
DUK10106973_005
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Freddie Mason-Perkins (19 months) at his home in Northampton. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689821
(c) Dukas -
DUK10106973_004
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Carlie Perkins (34) from Northampton with son Freddie Mason-Perkins (19 months) at home in Northampton. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689822
(c) Dukas -
DUK10106973_003
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Freddie Mason-Perkins (19 months) at his home in Northampton. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689823
(c) Dukas -
DUK10106973_002
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Carlie Perkins age 34 takes son Freddie Masons-Perkins age 19 months out in his pushchair that has a special cover to prevent Freddie from being in the light. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689824
(c) Dukas -
DUK10106973_001
SCHICKSALE - Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden
SONDERKONDITIONEN: Satzpreis!
Extrem selten: Baby leidet an Trichothiodystrophie (TTD) und muss jeglichen Kontakt mit Sonnenlicht vermeiden / 060918 *** Collect of Carlie Perkins with her son Freddie Mason-Perkins who has a rare genetic condition that prevents him from going outside as the light will burn his skin. Freddie suffers with a rare genetic conditon that prevents him from going outside in the light as it will burn his skin. See NTI story NTISUN. A baby born with a one-in-a-million genetic disorder has to avoid all contact with sunlight because of the damage it would do to his skin. Freddie Mason-Perkins, 19 months old, has an extremely rare genetic disorder called Trichothiodystrophy (TTD), which affects one child in a million. If his skin gets burned, his DNA is unable to repair itself - meaning he can’t go outside unless he is covered in a blanket. He can’t even go near a window in his home - and his mum Carlie Perkins has to keep all curtains drawn in their house. He was born prematurely at 28 weeks, weighing 2lb 5oz and has many complex health problems from his heart and lungs, to his brain, skull, skin, eyes, stomach and ability to eat. He currently weighs just 4.98kg - and is unlikely to survive into adulthood. Freddie has been in hospital since November 2017 and transferred to London’s Great Ormond Street Hospital (GOSH) last December. / action press *** Local Caption *** 27689806
(c) Dukas -
DUK10003967_048
NEWS: Davongekommen: Syrische FlŸchtlingskinder und ihr Schicksal
Sonderkonditionen / Mindesthonorar / Davongekommen: Syrische FlŸchtlingskinder und ihr Schicksal / 2015 ***Sleeping Syrian refugee children - Walaa, 5, wants to go home. She had her own room in Aleppo, she tells us. There, she never used to cry at bedtime. Here, in the refugee camp, she cries every night. Resting her head on the pillow is horrible, she says, because nighttime is horrible. That was when the attacks happened. By day, Walaa?s mother often builds a little house out of pillows, to teach her that they are nothing to be afraid of. Dar-el-Ias refugee camp.
2015-02-10*** (FOTO: DUKAS/ACTIONPRESS) *** Local Caption *** 19908923
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DUK10003967_047
NEWS: Davongekommen: Syrische FlŸchtlingskinder und ihr Schicksal
Sonderkonditionen / Mindesthonorar / Davongekommen: Syrische FlŸchtlingskinder und ihr Schicksal / 2015 ***Sleeping Syrian refugee children - Mohammed, 13, loves houses. Back home, in Aleppo, he used to enjoy walking around the city looking at them. Now, many of his favourite buildings are gone, blown to pieces. Lying in his hospital bed, he wonders whether he will ever fulfill his dream of becoming an architect.
?The strangest thing about war is that you get used to feeling scared. I wouldn?t have believed that,? says Mohammed. Refugee camp in Nizip, Turkey.*** (FOTO: DUKAS/ACTIONPRESS) *** Local Caption *** 19908927
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DUK10003967_044
NEWS: Davongekommen: Syrische FlŸchtlingskinder und ihr Schicksal
Sonderkonditionen / Mindesthonorar / Davongekommen: Syrische FlŸchtlingskinder und ihr Schicksal / 2015 ***Sleeping Syrian refugee children - Fara, 2, loves football. Her father tries to make footballs of all the material he could find. Every night when he says good night to Fara, and her older sister Tisam, 9, he hopes that they will wake up to a new day when they will get a real football to play with. All other dreams feels unattainable for him. Refugee camp in Azraq, Jordan.
2015-02-08*** (FOTO: DUKAS/ACTIONPRESS) *** Local Caption *** 19908924
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DUK10153688_002
SCHICKSALE - Kate und Andy Goodall verlieren ihr Baby wegen eines bösartigen Tumors im Zentralnervensystem des Kindes
Kate described Jacob as a 'cheeky, cuddly and wonderful' boy (Collect/PA Real Life) *** HEADLINECouple rushed forward their wedding to give baby boy with brain tumour the family name before he died in their armsSUMMARYKate Goodall, 44, said her little boy has ‘left such a legacy’ following his death, and she is now raising money to help find a cure for the disease.BODYA couple who sang the song In The Arms Of The Angel to their four-month-old baby as he died in their arms rushed forward their wedding so their “cheeky, cuddly and wonderful” boy could have the family name before he passed away.Kate Goodall, 44, who lives in Dumfries, Scotland, with her husband, Andy, 44, said “the bottom literally fell out of our world” when their son, Jacob, was diagnosed with a rare brain tumour – an atypical teratoid rhabdoid tumour (ATRT) – at five weeks old.Jacob underwent surgery and, after doctors were able to remove 95% of the mass, Kate said “the horror and the devastation suddenly turned into a little bit of hope” but weeks later it was discovered the brain tumour had increased in size and Jacob had developed another lump on his kidney.Days later, on Kate’s birthday, she recalled how the couple “knew then that the time was upon them” and Jacob died the following day on November 24 2016.Kate, who works in sales, said her little boy has “left such a legacy” and, reflecting on his death more than six years later, she is now working with the charity Brain Tumour Research to complete the ‘10,000 Steps a Day in February’ challenge to raise money to help find a cure for the disease.“Fitness aside, my motivation to do it is Jacob, and to make sure, or at least try to make sure that, whether it’s now or in the future, other families do not go through what we have because I wouldn’t wish it on anyone,” she said.Kate said she had a ‘normal’ pregnancy with Jacob, but she had to undergo an emergency C-section as he was two weeks late and in *** Local Caption *** 41122068
(c) Dukas -
DUK10153688_001
SCHICKSALE - Kate und Andy Goodall verlieren ihr Baby wegen eines bösartigen Tumors im Zentralnervensystem des Kindes
On November 24 2016, Jacob died peacefully in the arms of his loving parents (Collect/PA Real Life) *** HEADLINECouple rushed forward their wedding to give baby boy with brain tumour the family name before he died in their armsSUMMARYKate Goodall, 44, said her little boy has ‘left such a legacy’ following his death, and she is now raising money to help find a cure for the disease.BODYA couple who sang the song In The Arms Of The Angel to their four-month-old baby as he died in their arms rushed forward their wedding so their “cheeky, cuddly and wonderful” boy could have the family name before he passed away.Kate Goodall, 44, who lives in Dumfries, Scotland, with her husband, Andy, 44, said “the bottom literally fell out of our world” when their son, Jacob, was diagnosed with a rare brain tumour – an atypical teratoid rhabdoid tumour (ATRT) – at five weeks old.Jacob underwent surgery and, after doctors were able to remove 95% of the mass, Kate said “the horror and the devastation suddenly turned into a little bit of hope” but weeks later it was discovered the brain tumour had increased in size and Jacob had developed another lump on his kidney.Days later, on Kate’s birthday, she recalled how the couple “knew then that the time was upon them” and Jacob died the following day on November 24 2016.Kate, who works in sales, said her little boy has “left such a legacy” and, reflecting on his death more than six years later, she is now working with the charity Brain Tumour Research to complete the ‘10,000 Steps a Day in February’ challenge to raise money to help find a cure for the disease.“Fitness aside, my motivation to do it is Jacob, and to make sure, or at least try to make sure that, whether it’s now or in the future, other families do not go through what we have because I wouldn’t wish it on anyone,” she said.Kate said she had a ‘normal’ pregnancy with Jacob, but she had to undergo an emergency C-section as he was two w *** Local Caption *** 41122067
(c) Dukas -
