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Very busy beach in Leba, Baltic sea, Poland
Very busy beach in Leba, Baltic Sea, Poland, Europe
Michael Runkel -
DUK10075194_117
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge works on a puzzle during a Sunday lunch at his family’s home in Puebla, Mexico on April 23, 2017. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272611
(c) Dukas -
DUK10075194_116
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge eats yogurt as he peels carrots for lunch at his home in Puebla, Mexico on April 23, 2017. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272590
(c) Dukas -
DUK10075194_115
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge looks at a plastic container of carrots at his home in Puebla, Mexico on April 23, 2017. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272583
(c) Dukas -
DUK10075194_114
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge displays his swimming medals in his bedroom in Puebla, Mexico on April 23, 2017. He is part of a sports team for people with disabilities. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272597
(c) Dukas -
DUK10075194_113
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge walks on a track with his team in Puebla, Mexico on April 23, 2017. He is part of a sports team for people with disabilities. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272538
(c) Dukas -
DUK10075194_112
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge displays his swimming medals in his bedroom in Puebla, Mexico on April 23, 2017. He is part of a sports team for people with disabilities. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272604
(c) Dukas -
DUK10075194_111
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge plays bocce ball in Puebla, Mexico on April 23, 2017. He is part of a sports team for people with disabilities. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272560
(c) Dukas -
DUK10075194_110
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge displays his swimming medals in his bedroom in Puebla, Mexico on April 23, 2017. He is part of a sports team for people with disabilities. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272600
(c) Dukas -
DUK10075194_109
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge plays bocce ball in Puebla, Mexico on April 23, 2017. He is part of a sports team for people with disabilities. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272574
(c) Dukas -
DUK10075194_108
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge plays bocce ball in Puebla, Mexico on April 23, 2017. He is part of a sports team for people with disabilities. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272551
(c) Dukas -
DUK10075194_107
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge plays bocce ball in Puebla, Mexico on April 23, 2017. He is part of a sports team for people with disabilities. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272548
(c) Dukas -
DUK10075194_101
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita poses for a portrait at her home in Mexico City, Mexico on April 19, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272529
(c) Dukas -
DUK10075194_093
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita gets a snack from a bag lowered down by her sister Olga at her home in Mexico City, Mexico on April 19, 2017. Because she had bariatric surgery in May 2012, her access to food must be strictly supervised and limited. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272535
(c) Dukas -
DUK10075194_083
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita gets upset because she wants to be served her meal five minutes before the scheduled time at her home in Mexico City, Mexico on April 19, 2017. Because she had bariatric surgery in May 2012, her access to food must be strictly supervised and limited. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272533
(c) Dukas -
DUK10075194_077
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
A photo from 1992 shows 19-year-old Lupita with her dog. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272532
(c) Dukas -
DUK10075194_075
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
This 1993 family photo shows Lupita at age 20. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272531
(c) Dukas -
DUK10075194_054
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita poses for a portrait in her bedroom at her home in Mexico City, Mexico on April 19, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272525
(c) Dukas -
DUK10075194_044
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
A photo from December 1995 shows Lupita at age 22 at the wedding of her sister Olga. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272528
(c) Dukas -
DUK10075194_043
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita poses for a portrait at her home in Mexico City, Mexico on April 19, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272524
(c) Dukas -
DUK10075194_011
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Housekeeper Mireya Zarzosa cleans Lupita’s wound at her home in Mexico City, Mexico on April 19, 2017. Lupita had bariatric surgery in 2012, but because she compulsively scratches the surgical wound when she gets anxious, her healing has been slow. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272523
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DUK10075194_007
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
A family photo from 1982 shows Lupita at age 9 with her sisters Gaby and Olga and the family dog. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272530
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DUK10075194_104
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
An annual meeting organized by Fundación María José, the Prader-Willi association of Mexico, in Mexico City, Mexico on April 9, 2017. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272516
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DUK10075194_094
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita (R) attends an annual meeting organized by Fundación María José, the Prader-Willi association of Mexico, in Mexico City, Mexico on April 9, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272513
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DUK10075194_081
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
An annual meeting organized by Fundación María José, the Prader-Willi association of Mexico, in Mexico City, Mexico on April 9, 2017. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272519
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DUK10075194_069
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Diego Emilio Lozada, a 23-month-old Mexican boy, attends an annual meeting organized by Fundación María José, the Prader-Willi association of Mexico, in Mexico City, Mexico on April 9, 2017. Diego weighs 13.5 kilograms (29.7 pounds) and stands 89 centimeters tall (2 feet 11 inches). He has been taking growth hormones since being diagnosed with Prader-Willi syndrome at nine months old. He eats five meals a day and follows a strict sugar- and wheat-free diet. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272517
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DUK10075194_062
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Diego Emilio Lozada, a 23-month-old Mexican boy, attends an annual meeting organized by Fundación María José, the Prader-Willi association of Mexico, in Mexico City, Mexico on April 9, 2017. Diego weighs 13.5 kilograms (29.7 pounds) and stands 89 centimeters tall (2 feet 11 inches). He has been taking growth hormones since being diagnosed with Prader-Willi syndrome at nine months old. He eats five meals a day and follows a strict sugar- and wheat-free diet. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272515
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DUK10075194_049
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
An annual meeting organized by Fundación María José, the Prader-Willi association of Mexico, in Mexico City, Mexico on April 9, 2017. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272518
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DUK10075194_023
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Diego Emilio Lozada, a 23-month-old Mexican boy, attends an annual meeting organized by Fundación María José, the Prader-Willi association of Mexico, in Mexico City, Mexico on April 9, 2017. Diego weighs 13.5 kilograms (29.7 pounds) and stands 89 centimeters tall (2 feet 11 inches). He has been taking growth hormones since being diagnosed with Prader-Willi syndrome at nine months old. He eats five meals a day and follows a strict sugar- and wheat-free diet. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272514
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DUK10075194_102
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita eats a snack served by her sister Olga at their home in Mexico City, Mexico on April 5, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272506
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DUK10075194_087
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita eats a snack served by her sister Olga at their home in Mexico City, Mexico on April 5, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272509
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DUK10075194_065
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita does needlepoint with her sister Olga at their home in Mexico City, Mexico on April 5, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272510
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DUK10075194_050
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita practices Qi Gong with her teacher in Mexico City, Mexico on April 5, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272504
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DUK10075194_048
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita practices Qi Gong with her teacher in Mexico City, Mexico on April 5, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272503
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DUK10075194_047
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita practices Qi Gong with her teacher in Mexico City, Mexico on April 5, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272505
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DUK10075194_034
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita looks at the snack her sister Olga has just served at their home in Mexico City, Mexico on April 5, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272508
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DUK10075194_003
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita eats a snack served by her sister Olga at their home in Mexico City, Mexico on April 5, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272507
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DUK10075194_105
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita and her boyfriend Jorge walk on the rooftop terrace of her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272500
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DUK10075194_100
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita’s sister Olga helps her apply lipstick at their home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272476
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DUK10075194_096
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita and her boyfriend Jorge rest on the rooftop terrace of her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272498
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DUK10075194_086
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita kisses her boyfriend Jorge while her sister Olga cuts Jorge’s birthday cake at her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272496
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DUK10075194_082
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita embraces her boyfriend Jorge, who has come to celebrate his 34th birthday at her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272483
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DUK10075194_067
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita embraces her boyfriend Jorge, who has come to celebrate his 34th birthday at her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272485
(c) Dukas -
DUK10075194_058
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita eats breakfast with her sister Olga at their home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272475
(c) Dukas -
DUK10075194_042
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita embraces her boyfriend Jorge during a family lunch to celebrate his 34th birthday at her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272493
(c) Dukas -
DUK10075194_035
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita embraces her boyfriend Jorge during a family lunch to celebrate his 34th birthday at her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272495
(c) Dukas -
DUK10075194_033
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita embraces her boyfriend Jorge, who has come to celebrate his 34th birthday at her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272489
(c) Dukas -
DUK10075194_026
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita eats breakfast with her sister Olga at their home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272473
(c) Dukas -
DUK10075194_015
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita embraces her boyfriend Jorge, who has come to celebrate his 34th birthday at her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272484
(c) Dukas -
DUK10075194_002
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita stands at the door of her house anxiously waiting for her boyfriend Jorge to arrive in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272479
(c) Dukas -
