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DUK10163996_006
SCHICKSALE - hr Mann hat eine fünfprozentige Überlebenschance: Cami und Jake Bartel aus Arizona kämpfen gemeinsam gegen sein MELAS-Syndrom
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
They had only been married five months and were happily making plans together.
And when Jake started complaining about a headache, Cami Bartel thought nothing of it.
He went to bed and the couple hoped he’d be better in the morning.
But at 4am on October 1 2019, Cami woke up to find Jake having a seizure next to her in bed.
“I called 911 immediately. It was surreal, almost like watching someone else’s life unravel,” says Cami, now 28.
“One moment we were planning our future, and the next I was rushing my 27-year-old husband to hospital without knowing if he’d survive.”
What began as a simple headache turned into a full-blown medical emergency overnight. By the time Jake was admitted, doctors were completely baffled.
“He didn’t just have a seizure,” says Cami.
“There was also swelling on his brain, and that really scared everyone.”
Doctors initially suspected a severe viral or bacterial infection and began testing for everything from meningitis to West Nile virus.
“They told me they were checking for all kinds of infections,” she says.
“But every single test came back negative. It was like watching them search in the dark while Jake got worse.”
With no clear answers and Jake’s condition deteriorating rapidly, doctors prepared Cami for the worst.
“That’s when they gave me the five per cent survival rate,” she says.
“They assumed it had to be some virus they just couldn’t identify, but they weren’t even considering anything beyond that.
“I was 22, sitting there, trying to process that my husband, who had been healthy just hours earlier, might not make it through the night.”
But Jake, now 32, defied the odds. After two weeks in hospital, he was discharged. However the nightmare was far from over. No one could explain what had happened or why.
“We went home with no diagnosis, just this overwhelming sense of fear mixed with relief,” says Cami.
During the hospit *** Local Caption *** 48040915
(c) Dukas - Double Fee ! -
DUK10163996_001
SCHICKSALE - hr Mann hat eine fünfprozentige Überlebenschance: Cami und Jake Bartel aus Arizona kämpfen gemeinsam gegen sein MELAS-Syndrom
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
They had only been married five months and were happily making plans together.
And when Jake started complaining about a headache, Cami Bartel thought nothing of it.
He went to bed and the couple hoped he’d be better in the morning.
But at 4am on October 1 2019, Cami woke up to find Jake having a seizure next to her in bed.
“I called 911 immediately. It was surreal, almost like watching someone else’s life unravel,” says Cami, now 28.
“One moment we were planning our future, and the next I was rushing my 27-year-old husband to hospital without knowing if he’d survive.”
What began as a simple headache turned into a full-blown medical emergency overnight. By the time Jake was admitted, doctors were completely baffled.
“He didn’t just have a seizure,” says Cami.
“There was also swelling on his brain, and that really scared everyone.”
Doctors initially suspected a severe viral or bacterial infection and began testing for everything from meningitis to West Nile virus.
“They told me they were checking for all kinds of infections,” she says.
“But every single test came back negative. It was like watching them search in the dark while Jake got worse.”
With no clear answers and Jake’s condition deteriorating rapidly, doctors prepared Cami for the worst.
“That’s when they gave me the five per cent survival rate,” she says.
“They assumed it had to be some virus they just couldn’t identify, but they weren’t even considering anything beyond that.
“I was 22, sitting there, trying to process that my husband, who had been healthy just hours earlier, might not make it through the night.”
But Jake, now 32, defied the odds. After two weeks in hospital, he was discharged. However the nightmare was far from over. No one could explain what had happened or why.
“We went home with no diagnosis, just this overwhelming sense of fear mixed with relief,” says Cami.
During the hospit *** Local Caption *** 48040909
(c) Dukas - Double Fee ! -
DUK10163996_016
SCHICKSALE - hr Mann hat eine fünfprozentige Überlebenschance: Cami und Jake Bartel aus Arizona kämpfen gemeinsam gegen sein MELAS-Syndrom
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
They had only been married five months and were happily making plans together.
And when Jake started complaining about a headache, Cami Bartel thought nothing of it.
He went to bed and the couple hoped he’d be better in the morning.
But at 4am on October 1 2019, Cami woke up to find Jake having a seizure next to her in bed.
“I called 911 immediately. It was surreal, almost like watching someone else’s life unravel,” says Cami, now 28.
“One moment we were planning our future, and the next I was rushing my 27-year-old husband to hospital without knowing if he’d survive.”
What began as a simple headache turned into a full-blown medical emergency overnight. By the time Jake was admitted, doctors were completely baffled.
“He didn’t just have a seizure,” says Cami.
“There was also swelling on his brain, and that really scared everyone.”
Doctors initially suspected a severe viral or bacterial infection and began testing for everything from meningitis to West Nile virus.
“They told me they were checking for all kinds of infections,” she says.
“But every single test came back negative. It was like watching them search in the dark while Jake got worse.”
With no clear answers and Jake’s condition deteriorating rapidly, doctors prepared Cami for the worst.
“That’s when they gave me the five per cent survival rate,” she says.
“They assumed it had to be some virus they just couldn’t identify, but they weren’t even considering anything beyond that.
“I was 22, sitting there, trying to process that my husband, who had been healthy just hours earlier, might not make it through the night.”
But Jake, now 32, defied the odds. After two weeks in hospital, he was discharged. However the nightmare was far from over. No one could explain what had happened or why.
“We went home with no diagnosis, just this overwhelming sense of fear mixed with relief,” says Cami.
During the hospit *** Local Caption *** 48040916
(c) Dukas - Double Fee ! -
DUK10163996_008
SCHICKSALE - hr Mann hat eine fünfprozentige Überlebenschance: Cami und Jake Bartel aus Arizona kämpfen gemeinsam gegen sein MELAS-Syndrom
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
They had only been married five months and were happily making plans together.
And when Jake started complaining about a headache, Cami Bartel thought nothing of it.
He went to bed and the couple hoped he’d be better in the morning.
But at 4am on October 1 2019, Cami woke up to find Jake having a seizure next to her in bed.
“I called 911 immediately. It was surreal, almost like watching someone else’s life unravel,” says Cami, now 28.
“One moment we were planning our future, and the next I was rushing my 27-year-old husband to hospital without knowing if he’d survive.”
What began as a simple headache turned into a full-blown medical emergency overnight. By the time Jake was admitted, doctors were completely baffled.
“He didn’t just have a seizure,” says Cami.
“There was also swelling on his brain, and that really scared everyone.”
Doctors initially suspected a severe viral or bacterial infection and began testing for everything from meningitis to West Nile virus.
“They told me they were checking for all kinds of infections,” she says.
“But every single test came back negative. It was like watching them search in the dark while Jake got worse.”
With no clear answers and Jake’s condition deteriorating rapidly, doctors prepared Cami for the worst.
“That’s when they gave me the five per cent survival rate,” she says.
“They assumed it had to be some virus they just couldn’t identify, but they weren’t even considering anything beyond that.
“I was 22, sitting there, trying to process that my husband, who had been healthy just hours earlier, might not make it through the night.”
But Jake, now 32, defied the odds. After two weeks in hospital, he was discharged. However the nightmare was far from over. No one could explain what had happened or why.
“We went home with no diagnosis, just this overwhelming sense of fear mixed with relief,” says Cami.
During the hospit *** Local Caption *** 48040918
(c) Dukas - Double Fee ! -
DUK10163996_002
SCHICKSALE - hr Mann hat eine fünfprozentige Überlebenschance: Cami und Jake Bartel aus Arizona kämpfen gemeinsam gegen sein MELAS-Syndrom
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
They had only been married five months and were happily making plans together.
And when Jake started complaining about a headache, Cami Bartel thought nothing of it.
He went to bed and the couple hoped he’d be better in the morning.
But at 4am on October 1 2019, Cami woke up to find Jake having a seizure next to her in bed.
“I called 911 immediately. It was surreal, almost like watching someone else’s life unravel,” says Cami, now 28.
“One moment we were planning our future, and the next I was rushing my 27-year-old husband to hospital without knowing if he’d survive.”
What began as a simple headache turned into a full-blown medical emergency overnight. By the time Jake was admitted, doctors were completely baffled.
“He didn’t just have a seizure,” says Cami.
“There was also swelling on his brain, and that really scared everyone.”
Doctors initially suspected a severe viral or bacterial infection and began testing for everything from meningitis to West Nile virus.
“They told me they were checking for all kinds of infections,” she says.
“But every single test came back negative. It was like watching them search in the dark while Jake got worse.”
With no clear answers and Jake’s condition deteriorating rapidly, doctors prepared Cami for the worst.
“That’s when they gave me the five per cent survival rate,” she says.
“They assumed it had to be some virus they just couldn’t identify, but they weren’t even considering anything beyond that.
“I was 22, sitting there, trying to process that my husband, who had been healthy just hours earlier, might not make it through the night.”
But Jake, now 32, defied the odds. After two weeks in hospital, he was discharged. However the nightmare was far from over. No one could explain what had happened or why.
“We went home with no diagnosis, just this overwhelming sense of fear mixed with relief,” says Cami.
During the hospit *** Local Caption *** 48040904
(c) Dukas - Double Fee ! -
DUK10163996_007
SCHICKSALE - hr Mann hat eine fünfprozentige Überlebenschance: Cami und Jake Bartel aus Arizona kämpfen gemeinsam gegen sein MELAS-Syndrom
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
They had only been married five months and were happily making plans together.
And when Jake started complaining about a headache, Cami Bartel thought nothing of it.
He went to bed and the couple hoped he’d be better in the morning.
But at 4am on October 1 2019, Cami woke up to find Jake having a seizure next to her in bed.
“I called 911 immediately. It was surreal, almost like watching someone else’s life unravel,” says Cami, now 28.
“One moment we were planning our future, and the next I was rushing my 27-year-old husband to hospital without knowing if he’d survive.”
What began as a simple headache turned into a full-blown medical emergency overnight. By the time Jake was admitted, doctors were completely baffled.
“He didn’t just have a seizure,” says Cami.
“There was also swelling on his brain, and that really scared everyone.”
Doctors initially suspected a severe viral or bacterial infection and began testing for everything from meningitis to West Nile virus.
“They told me they were checking for all kinds of infections,” she says.
“But every single test came back negative. It was like watching them search in the dark while Jake got worse.”
With no clear answers and Jake’s condition deteriorating rapidly, doctors prepared Cami for the worst.
“That’s when they gave me the five per cent survival rate,” she says.
“They assumed it had to be some virus they just couldn’t identify, but they weren’t even considering anything beyond that.
“I was 22, sitting there, trying to process that my husband, who had been healthy just hours earlier, might not make it through the night.”
But Jake, now 32, defied the odds. After two weeks in hospital, he was discharged. However the nightmare was far from over. No one could explain what had happened or why.
“We went home with no diagnosis, just this overwhelming sense of fear mixed with relief,” says Cami.
During the hospit *** Local Caption *** 48040917
(c) Dukas - Double Fee ! -
DUK10163996_004
SCHICKSALE - hr Mann hat eine fünfprozentige Überlebenschance: Cami und Jake Bartel aus Arizona kämpfen gemeinsam gegen sein MELAS-Syndrom
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
They had only been married five months and were happily making plans together.
And when Jake started complaining about a headache, Cami Bartel thought nothing of it.
He went to bed and the couple hoped he’d be better in the morning.
But at 4am on October 1 2019, Cami woke up to find Jake having a seizure next to her in bed.
“I called 911 immediately. It was surreal, almost like watching someone else’s life unravel,” says Cami, now 28.
“One moment we were planning our future, and the next I was rushing my 27-year-old husband to hospital without knowing if he’d survive.”
What began as a simple headache turned into a full-blown medical emergency overnight. By the time Jake was admitted, doctors were completely baffled.
“He didn’t just have a seizure,” says Cami.
“There was also swelling on his brain, and that really scared everyone.”
Doctors initially suspected a severe viral or bacterial infection and began testing for everything from meningitis to West Nile virus.
“They told me they were checking for all kinds of infections,” she says.
“But every single test came back negative. It was like watching them search in the dark while Jake got worse.”
With no clear answers and Jake’s condition deteriorating rapidly, doctors prepared Cami for the worst.
“That’s when they gave me the five per cent survival rate,” she says.
“They assumed it had to be some virus they just couldn’t identify, but they weren’t even considering anything beyond that.
“I was 22, sitting there, trying to process that my husband, who had been healthy just hours earlier, might not make it through the night.”
But Jake, now 32, defied the odds. After two weeks in hospital, he was discharged. However the nightmare was far from over. No one could explain what had happened or why.
“We went home with no diagnosis, just this overwhelming sense of fear mixed with relief,” says Cami.
During the hospit *** Local Caption *** 48040912
(c) Dukas - Double Fee ! -
DUK10163996_014
SCHICKSALE - hr Mann hat eine fünfprozentige Überlebenschance: Cami und Jake Bartel aus Arizona kämpfen gemeinsam gegen sein MELAS-Syndrom
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
They had only been married five months and were happily making plans together.
And when Jake started complaining about a headache, Cami Bartel thought nothing of it.
He went to bed and the couple hoped he’d be better in the morning.
But at 4am on October 1 2019, Cami woke up to find Jake having a seizure next to her in bed.
“I called 911 immediately. It was surreal, almost like watching someone else’s life unravel,” says Cami, now 28.
“One moment we were planning our future, and the next I was rushing my 27-year-old husband to hospital without knowing if he’d survive.”
What began as a simple headache turned into a full-blown medical emergency overnight. By the time Jake was admitted, doctors were completely baffled.
“He didn’t just have a seizure,” says Cami.
“There was also swelling on his brain, and that really scared everyone.”
Doctors initially suspected a severe viral or bacterial infection and began testing for everything from meningitis to West Nile virus.
“They told me they were checking for all kinds of infections,” she says.
“But every single test came back negative. It was like watching them search in the dark while Jake got worse.”
With no clear answers and Jake’s condition deteriorating rapidly, doctors prepared Cami for the worst.
“That’s when they gave me the five per cent survival rate,” she says.
“They assumed it had to be some virus they just couldn’t identify, but they weren’t even considering anything beyond that.
“I was 22, sitting there, trying to process that my husband, who had been healthy just hours earlier, might not make it through the night.”
But Jake, now 32, defied the odds. After two weeks in hospital, he was discharged. However the nightmare was far from over. No one could explain what had happened or why.
“We went home with no diagnosis, just this overwhelming sense of fear mixed with relief,” says Cami.
During the hospit *** Local Caption *** 48040911
(c) Dukas - Double Fee ! -
DUK10163996_015
SCHICKSALE - hr Mann hat eine fünfprozentige Überlebenschance: Cami und Jake Bartel aus Arizona kämpfen gemeinsam gegen sein MELAS-Syndrom
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
They had only been married five months and were happily making plans together.
And when Jake started complaining about a headache, Cami Bartel thought nothing of it.
He went to bed and the couple hoped he’d be better in the morning.
But at 4am on October 1 2019, Cami woke up to find Jake having a seizure next to her in bed.
“I called 911 immediately. It was surreal, almost like watching someone else’s life unravel,” says Cami, now 28.
“One moment we were planning our future, and the next I was rushing my 27-year-old husband to hospital without knowing if he’d survive.”
What began as a simple headache turned into a full-blown medical emergency overnight. By the time Jake was admitted, doctors were completely baffled.
“He didn’t just have a seizure,” says Cami.
“There was also swelling on his brain, and that really scared everyone.”
Doctors initially suspected a severe viral or bacterial infection and began testing for everything from meningitis to West Nile virus.
“They told me they were checking for all kinds of infections,” she says.
“But every single test came back negative. It was like watching them search in the dark while Jake got worse.”
With no clear answers and Jake’s condition deteriorating rapidly, doctors prepared Cami for the worst.
“That’s when they gave me the five per cent survival rate,” she says.
“They assumed it had to be some virus they just couldn’t identify, but they weren’t even considering anything beyond that.
“I was 22, sitting there, trying to process that my husband, who had been healthy just hours earlier, might not make it through the night.”
But Jake, now 32, defied the odds. After two weeks in hospital, he was discharged. However the nightmare was far from over. No one could explain what had happened or why.
“We went home with no diagnosis, just this overwhelming sense of fear mixed with relief,” says Cami.
During the hospit *** Local Caption *** 48040913
(c) Dukas - Double Fee ! -
DUK10163996_013
SCHICKSALE - hr Mann hat eine fünfprozentige Überlebenschance: Cami und Jake Bartel aus Arizona kämpfen gemeinsam gegen sein MELAS-Syndrom
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
They had only been married five months and were happily making plans together.
And when Jake started complaining about a headache, Cami Bartel thought nothing of it.
He went to bed and the couple hoped he’d be better in the morning.
But at 4am on October 1 2019, Cami woke up to find Jake having a seizure next to her in bed.
“I called 911 immediately. It was surreal, almost like watching someone else’s life unravel,” says Cami, now 28.
“One moment we were planning our future, and the next I was rushing my 27-year-old husband to hospital without knowing if he’d survive.”
What began as a simple headache turned into a full-blown medical emergency overnight. By the time Jake was admitted, doctors were completely baffled.
“He didn’t just have a seizure,” says Cami.
“There was also swelling on his brain, and that really scared everyone.”
Doctors initially suspected a severe viral or bacterial infection and began testing for everything from meningitis to West Nile virus.
“They told me they were checking for all kinds of infections,” she says.
“But every single test came back negative. It was like watching them search in the dark while Jake got worse.”
With no clear answers and Jake’s condition deteriorating rapidly, doctors prepared Cami for the worst.
“That’s when they gave me the five per cent survival rate,” she says.
“They assumed it had to be some virus they just couldn’t identify, but they weren’t even considering anything beyond that.
“I was 22, sitting there, trying to process that my husband, who had been healthy just hours earlier, might not make it through the night.”
But Jake, now 32, defied the odds. After two weeks in hospital, he was discharged. However the nightmare was far from over. No one could explain what had happened or why.
“We went home with no diagnosis, just this overwhelming sense of fear mixed with relief,” says Cami.
During the hospit *** Local Caption *** 48040910
(c) Dukas - Double Fee ! -
DUK10163996_011
SCHICKSALE - hr Mann hat eine fünfprozentige Überlebenschance: Cami und Jake Bartel aus Arizona kämpfen gemeinsam gegen sein MELAS-Syndrom
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
They had only been married five months and were happily making plans together.
And when Jake started complaining about a headache, Cami Bartel thought nothing of it.
He went to bed and the couple hoped he’d be better in the morning.
But at 4am on October 1 2019, Cami woke up to find Jake having a seizure next to her in bed.
“I called 911 immediately. It was surreal, almost like watching someone else’s life unravel,” says Cami, now 28.
“One moment we were planning our future, and the next I was rushing my 27-year-old husband to hospital without knowing if he’d survive.”
What began as a simple headache turned into a full-blown medical emergency overnight. By the time Jake was admitted, doctors were completely baffled.
“He didn’t just have a seizure,” says Cami.
“There was also swelling on his brain, and that really scared everyone.”
Doctors initially suspected a severe viral or bacterial infection and began testing for everything from meningitis to West Nile virus.
“They told me they were checking for all kinds of infections,” she says.
“But every single test came back negative. It was like watching them search in the dark while Jake got worse.”
With no clear answers and Jake’s condition deteriorating rapidly, doctors prepared Cami for the worst.
“That’s when they gave me the five per cent survival rate,” she says.
“They assumed it had to be some virus they just couldn’t identify, but they weren’t even considering anything beyond that.
“I was 22, sitting there, trying to process that my husband, who had been healthy just hours earlier, might not make it through the night.”
But Jake, now 32, defied the odds. After two weeks in hospital, he was discharged. However the nightmare was far from over. No one could explain what had happened or why.
“We went home with no diagnosis, just this overwhelming sense of fear mixed with relief,” says Cami.
During the hospit *** Local Caption *** 48040907
(c) Dukas - Double Fee ! -
DUK10163996_005
SCHICKSALE - hr Mann hat eine fünfprozentige Überlebenschance: Cami und Jake Bartel aus Arizona kämpfen gemeinsam gegen sein MELAS-Syndrom
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
They had only been married five months and were happily making plans together.
And when Jake started complaining about a headache, Cami Bartel thought nothing of it.
He went to bed and the couple hoped he’d be better in the morning.
But at 4am on October 1 2019, Cami woke up to find Jake having a seizure next to her in bed.
“I called 911 immediately. It was surreal, almost like watching someone else’s life unravel,” says Cami, now 28.
“One moment we were planning our future, and the next I was rushing my 27-year-old husband to hospital without knowing if he’d survive.”
What began as a simple headache turned into a full-blown medical emergency overnight. By the time Jake was admitted, doctors were completely baffled.
“He didn’t just have a seizure,” says Cami.
“There was also swelling on his brain, and that really scared everyone.”
Doctors initially suspected a severe viral or bacterial infection and began testing for everything from meningitis to West Nile virus.
“They told me they were checking for all kinds of infections,” she says.
“But every single test came back negative. It was like watching them search in the dark while Jake got worse.”
With no clear answers and Jake’s condition deteriorating rapidly, doctors prepared Cami for the worst.
“That’s when they gave me the five per cent survival rate,” she says.
“They assumed it had to be some virus they just couldn’t identify, but they weren’t even considering anything beyond that.
“I was 22, sitting there, trying to process that my husband, who had been healthy just hours earlier, might not make it through the night.”
But Jake, now 32, defied the odds. After two weeks in hospital, he was discharged. However the nightmare was far from over. No one could explain what had happened or why.
“We went home with no diagnosis, just this overwhelming sense of fear mixed with relief,” says Cami.
During the hospit *** Local Caption *** 48040914
(c) Dukas - Double Fee ! -
DUK10163996_010
SCHICKSALE - hr Mann hat eine fünfprozentige Überlebenschance: Cami und Jake Bartel aus Arizona kämpfen gemeinsam gegen sein MELAS-Syndrom
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
They had only been married five months and were happily making plans together.
And when Jake started complaining about a headache, Cami Bartel thought nothing of it.
He went to bed and the couple hoped he’d be better in the morning.
But at 4am on October 1 2019, Cami woke up to find Jake having a seizure next to her in bed.
“I called 911 immediately. It was surreal, almost like watching someone else’s life unravel,” says Cami, now 28.
“One moment we were planning our future, and the next I was rushing my 27-year-old husband to hospital without knowing if he’d survive.”
What began as a simple headache turned into a full-blown medical emergency overnight. By the time Jake was admitted, doctors were completely baffled.
“He didn’t just have a seizure,” says Cami.
“There was also swelling on his brain, and that really scared everyone.”
Doctors initially suspected a severe viral or bacterial infection and began testing for everything from meningitis to West Nile virus.
“They told me they were checking for all kinds of infections,” she says.
“But every single test came back negative. It was like watching them search in the dark while Jake got worse.”
With no clear answers and Jake’s condition deteriorating rapidly, doctors prepared Cami for the worst.
“That’s when they gave me the five per cent survival rate,” she says.
“They assumed it had to be some virus they just couldn’t identify, but they weren’t even considering anything beyond that.
“I was 22, sitting there, trying to process that my husband, who had been healthy just hours earlier, might not make it through the night.”
But Jake, now 32, defied the odds. After two weeks in hospital, he was discharged. However the nightmare was far from over. No one could explain what had happened or why.
“We went home with no diagnosis, just this overwhelming sense of fear mixed with relief,” says Cami.
During the hospit *** Local Caption *** 48040906
(c) Dukas - Double Fee ! -
DUK10163996_012
SCHICKSALE - hr Mann hat eine fünfprozentige Überlebenschance: Cami und Jake Bartel aus Arizona kämpfen gemeinsam gegen sein MELAS-Syndrom
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
They had only been married five months and were happily making plans together.
And when Jake started complaining about a headache, Cami Bartel thought nothing of it.
He went to bed and the couple hoped he’d be better in the morning.
But at 4am on October 1 2019, Cami woke up to find Jake having a seizure next to her in bed.
“I called 911 immediately. It was surreal, almost like watching someone else’s life unravel,” says Cami, now 28.
“One moment we were planning our future, and the next I was rushing my 27-year-old husband to hospital without knowing if he’d survive.”
What began as a simple headache turned into a full-blown medical emergency overnight. By the time Jake was admitted, doctors were completely baffled.
“He didn’t just have a seizure,” says Cami.
“There was also swelling on his brain, and that really scared everyone.”
Doctors initially suspected a severe viral or bacterial infection and began testing for everything from meningitis to West Nile virus.
“They told me they were checking for all kinds of infections,” she says.
“But every single test came back negative. It was like watching them search in the dark while Jake got worse.”
With no clear answers and Jake’s condition deteriorating rapidly, doctors prepared Cami for the worst.
“That’s when they gave me the five per cent survival rate,” she says.
“They assumed it had to be some virus they just couldn’t identify, but they weren’t even considering anything beyond that.
“I was 22, sitting there, trying to process that my husband, who had been healthy just hours earlier, might not make it through the night.”
But Jake, now 32, defied the odds. After two weeks in hospital, he was discharged. However the nightmare was far from over. No one could explain what had happened or why.
“We went home with no diagnosis, just this overwhelming sense of fear mixed with relief,” says Cami.
During the hospit *** Local Caption *** 48040908
(c) Dukas - Double Fee ! -
DUK10163996_003
SCHICKSALE - hr Mann hat eine fünfprozentige Überlebenschance: Cami und Jake Bartel aus Arizona kämpfen gemeinsam gegen sein MELAS-Syndrom
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
They had only been married five months and were happily making plans together.
And when Jake started complaining about a headache, Cami Bartel thought nothing of it.
He went to bed and the couple hoped he’d be better in the morning.
But at 4am on October 1 2019, Cami woke up to find Jake having a seizure next to her in bed.
“I called 911 immediately. It was surreal, almost like watching someone else’s life unravel,” says Cami, now 28.
“One moment we were planning our future, and the next I was rushing my 27-year-old husband to hospital without knowing if he’d survive.”
What began as a simple headache turned into a full-blown medical emergency overnight. By the time Jake was admitted, doctors were completely baffled.
“He didn’t just have a seizure,” says Cami.
“There was also swelling on his brain, and that really scared everyone.”
Doctors initially suspected a severe viral or bacterial infection and began testing for everything from meningitis to West Nile virus.
“They told me they were checking for all kinds of infections,” she says.
“But every single test came back negative. It was like watching them search in the dark while Jake got worse.”
With no clear answers and Jake’s condition deteriorating rapidly, doctors prepared Cami for the worst.
“That’s when they gave me the five per cent survival rate,” she says.
“They assumed it had to be some virus they just couldn’t identify, but they weren’t even considering anything beyond that.
“I was 22, sitting there, trying to process that my husband, who had been healthy just hours earlier, might not make it through the night.”
But Jake, now 32, defied the odds. After two weeks in hospital, he was discharged. However the nightmare was far from over. No one could explain what had happened or why.
“We went home with no diagnosis, just this overwhelming sense of fear mixed with relief,” says Cami.
During the hospit *** Local Caption *** 48040905
(c) Dukas - Double Fee ! -
DUK10163996_009
SCHICKSALE - hr Mann hat eine fünfprozentige Überlebenschance: Cami und Jake Bartel aus Arizona kämpfen gemeinsam gegen sein MELAS-Syndrom
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
They had only been married five months and were happily making plans together.
And when Jake started complaining about a headache, Cami Bartel thought nothing of it.
He went to bed and the couple hoped he’d be better in the morning.
But at 4am on October 1 2019, Cami woke up to find Jake having a seizure next to her in bed.
“I called 911 immediately. It was surreal, almost like watching someone else’s life unravel,” says Cami, now 28.
“One moment we were planning our future, and the next I was rushing my 27-year-old husband to hospital without knowing if he’d survive.”
What began as a simple headache turned into a full-blown medical emergency overnight. By the time Jake was admitted, doctors were completely baffled.
“He didn’t just have a seizure,” says Cami.
“There was also swelling on his brain, and that really scared everyone.”
Doctors initially suspected a severe viral or bacterial infection and began testing for everything from meningitis to West Nile virus.
“They told me they were checking for all kinds of infections,” she says.
“But every single test came back negative. It was like watching them search in the dark while Jake got worse.”
With no clear answers and Jake’s condition deteriorating rapidly, doctors prepared Cami for the worst.
“That’s when they gave me the five per cent survival rate,” she says.
“They assumed it had to be some virus they just couldn’t identify, but they weren’t even considering anything beyond that.
“I was 22, sitting there, trying to process that my husband, who had been healthy just hours earlier, might not make it through the night.”
But Jake, now 32, defied the odds. After two weeks in hospital, he was discharged. However the nightmare was far from over. No one could explain what had happened or why.
“We went home with no diagnosis, just this overwhelming sense of fear mixed with relief,” says Cami.
During the hospit *** Local Caption *** 48040900
(c) Dukas - Double Fee ! -
DUK10163586_002
A Fairytale Home In The Woods: Das Aussteigerpaar Kai und Ben lebt in ihrem umgebauten Truck in den Wäldern von British Columbia
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
**EDITORS NOTE: We cannot use her surname**
If you go into the woods of British Columbia today you could be in for a big surprise.
You might just find parked up for the night a truly magical truck with a handcrafted house built on to its back.
The International 4800, a beast of a vehicle originally made for off-road utility work, has been reborn as a whimsical, wood-fired, off-grid sanctuary.
It took five years to create after it was bought in 2013 by a woman who made the project her labour of love.
“I called it The Ugly Truckling because I always loved the story of the ugly duckling,” says the creator of the fantasy mobile home who likes to be known simply as Kai.
“I was an awkward, weird kid. Honestly, I’m an awkward, weird adult. But like the duckling, the truck started off ugly, and it grew into something I think is secretly beautiful.”
From the outside, the house truck looks like something out of a Disney dream.
Cedar shake siding wraps the entire frame, salvaged century-old windows add soul and light, and a hand-built Dutch door with curved stained glass makes the entryway look like it belongs on a woodland fairy tale set.
“When I first moved in, it didn’t have electricity, running water, or plumbing. It was just a box on wheels. I slowly built everything around me,’ says Kai, who is in her thirties.
“Now, it has most modern amenities. It’s not finished, but it’s comfortable, and its mine.
“I made that door myself. I used old glass with air bubbles in it to mimic historic pub windows. I wanted it to feel alive, like a house that evolved over time, not just something an architect plonked down.”
Inside, every inch of the 200-square-foot interior is bursting with detail and character. There’s a round window that Kai also made by hand, after discovering that buying one would cost her a whopping £3 700 ($5 000).
“I thought, ‘No way,’ so I just taught myself how to build on *** Local Caption *
(c) Dukas -
DUK10163586_001
A Fairytale Home In The Woods: Das Aussteigerpaar Kai und Ben lebt in ihrem umgebauten Truck in den Wäldern von British Columbia
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
**EDITORS NOTE: We cannot use her surname**
If you go into the woods of British Columbia today you could be in for a big surprise.
You might just find parked up for the night a truly magical truck with a handcrafted house built on to its back.
The International 4800, a beast of a vehicle originally made for off-road utility work, has been reborn as a whimsical, wood-fired, off-grid sanctuary.
It took five years to create after it was bought in 2013 by a woman who made the project her labour of love.
“I called it The Ugly Truckling because I always loved the story of the ugly duckling,” says the creator of the fantasy mobile home who likes to be known simply as Kai.
“I was an awkward, weird kid. Honestly, I’m an awkward, weird adult. But like the duckling, the truck started off ugly, and it grew into something I think is secretly beautiful.”
From the outside, the house truck looks like something out of a Disney dream.
Cedar shake siding wraps the entire frame, salvaged century-old windows add soul and light, and a hand-built Dutch door with curved stained glass makes the entryway look like it belongs on a woodland fairy tale set.
“When I first moved in, it didn’t have electricity, running water, or plumbing. It was just a box on wheels. I slowly built everything around me,’ says Kai, who is in her thirties.
“Now, it has most modern amenities. It’s not finished, but it’s comfortable, and its mine.
“I made that door myself. I used old glass with air bubbles in it to mimic historic pub windows. I wanted it to feel alive, like a house that evolved over time, not just something an architect plonked down.”
Inside, every inch of the 200-square-foot interior is bursting with detail and character. There’s a round window that Kai also made by hand, after discovering that buying one would cost her a whopping £3 700 ($5 000).
“I thought, ‘No way,’ so I just taught myself how to build on *** Local Caption *
(c) Dukas -
DUK10163586_007
A Fairytale Home In The Woods: Das Aussteigerpaar Kai und Ben lebt in ihrem umgebauten Truck in den Wäldern von British Columbia
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
**EDITORS NOTE: We cannot use her surname**
If you go into the woods of British Columbia today you could be in for a big surprise.
You might just find parked up for the night a truly magical truck with a handcrafted house built on to its back.
The International 4800, a beast of a vehicle originally made for off-road utility work, has been reborn as a whimsical, wood-fired, off-grid sanctuary.
It took five years to create after it was bought in 2013 by a woman who made the project her labour of love.
“I called it The Ugly Truckling because I always loved the story of the ugly duckling,” says the creator of the fantasy mobile home who likes to be known simply as Kai.
“I was an awkward, weird kid. Honestly, I’m an awkward, weird adult. But like the duckling, the truck started off ugly, and it grew into something I think is secretly beautiful.”
From the outside, the house truck looks like something out of a Disney dream.
Cedar shake siding wraps the entire frame, salvaged century-old windows add soul and light, and a hand-built Dutch door with curved stained glass makes the entryway look like it belongs on a woodland fairy tale set.
“When I first moved in, it didn’t have electricity, running water, or plumbing. It was just a box on wheels. I slowly built everything around me,’ says Kai, who is in her thirties.
“Now, it has most modern amenities. It’s not finished, but it’s comfortable, and its mine.
“I made that door myself. I used old glass with air bubbles in it to mimic historic pub windows. I wanted it to feel alive, like a house that evolved over time, not just something an architect plonked down.”
Inside, every inch of the 200-square-foot interior is bursting with detail and character. There’s a round window that Kai also made by hand, after discovering that buying one would cost her a whopping £3 700 ($5 000).
“I thought, ‘No way,’ so I just taught myself how to build on *** Local Caption *
(c) Dukas -
DUK10163586_010
A Fairytale Home In The Woods: Das Aussteigerpaar Kai und Ben lebt in ihrem umgebauten Truck in den Wäldern von British Columbia
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
**EDITORS NOTE: We cannot use her surname**
If you go into the woods of British Columbia today you could be in for a big surprise.
You might just find parked up for the night a truly magical truck with a handcrafted house built on to its back.
The International 4800, a beast of a vehicle originally made for off-road utility work, has been reborn as a whimsical, wood-fired, off-grid sanctuary.
It took five years to create after it was bought in 2013 by a woman who made the project her labour of love.
“I called it The Ugly Truckling because I always loved the story of the ugly duckling,” says the creator of the fantasy mobile home who likes to be known simply as Kai.
“I was an awkward, weird kid. Honestly, I’m an awkward, weird adult. But like the duckling, the truck started off ugly, and it grew into something I think is secretly beautiful.”
From the outside, the house truck looks like something out of a Disney dream.
Cedar shake siding wraps the entire frame, salvaged century-old windows add soul and light, and a hand-built Dutch door with curved stained glass makes the entryway look like it belongs on a woodland fairy tale set.
“When I first moved in, it didn’t have electricity, running water, or plumbing. It was just a box on wheels. I slowly built everything around me,’ says Kai, who is in her thirties.
“Now, it has most modern amenities. It’s not finished, but it’s comfortable, and its mine.
“I made that door myself. I used old glass with air bubbles in it to mimic historic pub windows. I wanted it to feel alive, like a house that evolved over time, not just something an architect plonked down.”
Inside, every inch of the 200-square-foot interior is bursting with detail and character. There’s a round window that Kai also made by hand, after discovering that buying one would cost her a whopping £3 700 ($5 000).
“I thought, ‘No way,’ so I just taught myself how to build on *** Local Caption *
(c) Dukas -
DUK10163586_011
A Fairytale Home In The Woods: Das Aussteigerpaar Kai und Ben lebt in ihrem umgebauten Truck in den Wäldern von British Columbia
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
**EDITORS NOTE: We cannot use her surname**
If you go into the woods of British Columbia today you could be in for a big surprise.
You might just find parked up for the night a truly magical truck with a handcrafted house built on to its back.
The International 4800, a beast of a vehicle originally made for off-road utility work, has been reborn as a whimsical, wood-fired, off-grid sanctuary.
It took five years to create after it was bought in 2013 by a woman who made the project her labour of love.
“I called it The Ugly Truckling because I always loved the story of the ugly duckling,” says the creator of the fantasy mobile home who likes to be known simply as Kai.
“I was an awkward, weird kid. Honestly, I’m an awkward, weird adult. But like the duckling, the truck started off ugly, and it grew into something I think is secretly beautiful.”
From the outside, the house truck looks like something out of a Disney dream.
Cedar shake siding wraps the entire frame, salvaged century-old windows add soul and light, and a hand-built Dutch door with curved stained glass makes the entryway look like it belongs on a woodland fairy tale set.
“When I first moved in, it didn’t have electricity, running water, or plumbing. It was just a box on wheels. I slowly built everything around me,’ says Kai, who is in her thirties.
“Now, it has most modern amenities. It’s not finished, but it’s comfortable, and its mine.
“I made that door myself. I used old glass with air bubbles in it to mimic historic pub windows. I wanted it to feel alive, like a house that evolved over time, not just something an architect plonked down.”
Inside, every inch of the 200-square-foot interior is bursting with detail and character. There’s a round window that Kai also made by hand, after discovering that buying one would cost her a whopping £3 700 ($5 000).
“I thought, ‘No way,’ so I just taught myself how to build on *** Local Caption *
(c) Dukas -
DUK10163586_003
A Fairytale Home In The Woods: Das Aussteigerpaar Kai und Ben lebt in ihrem umgebauten Truck in den Wäldern von British Columbia
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
**EDITORS NOTE: We cannot use her surname**
If you go into the woods of British Columbia today you could be in for a big surprise.
You might just find parked up for the night a truly magical truck with a handcrafted house built on to its back.
The International 4800, a beast of a vehicle originally made for off-road utility work, has been reborn as a whimsical, wood-fired, off-grid sanctuary.
It took five years to create after it was bought in 2013 by a woman who made the project her labour of love.
“I called it The Ugly Truckling because I always loved the story of the ugly duckling,” says the creator of the fantasy mobile home who likes to be known simply as Kai.
“I was an awkward, weird kid. Honestly, I’m an awkward, weird adult. But like the duckling, the truck started off ugly, and it grew into something I think is secretly beautiful.”
From the outside, the house truck looks like something out of a Disney dream.
Cedar shake siding wraps the entire frame, salvaged century-old windows add soul and light, and a hand-built Dutch door with curved stained glass makes the entryway look like it belongs on a woodland fairy tale set.
“When I first moved in, it didn’t have electricity, running water, or plumbing. It was just a box on wheels. I slowly built everything around me,’ says Kai, who is in her thirties.
“Now, it has most modern amenities. It’s not finished, but it’s comfortable, and its mine.
“I made that door myself. I used old glass with air bubbles in it to mimic historic pub windows. I wanted it to feel alive, like a house that evolved over time, not just something an architect plonked down.”
Inside, every inch of the 200-square-foot interior is bursting with detail and character. There’s a round window that Kai also made by hand, after discovering that buying one would cost her a whopping £3 700 ($5 000).
“I thought, ‘No way,’ so I just taught myself how to build on *** Local Caption *
(c) Dukas -
DUK10163586_006
A Fairytale Home In The Woods: Das Aussteigerpaar Kai und Ben lebt in ihrem umgebauten Truck in den Wäldern von British Columbia
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
**EDITORS NOTE: We cannot use her surname**
If you go into the woods of British Columbia today you could be in for a big surprise.
You might just find parked up for the night a truly magical truck with a handcrafted house built on to its back.
The International 4800, a beast of a vehicle originally made for off-road utility work, has been reborn as a whimsical, wood-fired, off-grid sanctuary.
It took five years to create after it was bought in 2013 by a woman who made the project her labour of love.
“I called it The Ugly Truckling because I always loved the story of the ugly duckling,” says the creator of the fantasy mobile home who likes to be known simply as Kai.
“I was an awkward, weird kid. Honestly, I’m an awkward, weird adult. But like the duckling, the truck started off ugly, and it grew into something I think is secretly beautiful.”
From the outside, the house truck looks like something out of a Disney dream.
Cedar shake siding wraps the entire frame, salvaged century-old windows add soul and light, and a hand-built Dutch door with curved stained glass makes the entryway look like it belongs on a woodland fairy tale set.
“When I first moved in, it didn’t have electricity, running water, or plumbing. It was just a box on wheels. I slowly built everything around me,’ says Kai, who is in her thirties.
“Now, it has most modern amenities. It’s not finished, but it’s comfortable, and its mine.
“I made that door myself. I used old glass with air bubbles in it to mimic historic pub windows. I wanted it to feel alive, like a house that evolved over time, not just something an architect plonked down.”
Inside, every inch of the 200-square-foot interior is bursting with detail and character. There’s a round window that Kai also made by hand, after discovering that buying one would cost her a whopping £3 700 ($5 000).
“I thought, ‘No way,’ so I just taught myself how to build on *** Local Caption *
(c) Dukas -
DUK10163586_009
A Fairytale Home In The Woods: Das Aussteigerpaar Kai und Ben lebt in ihrem umgebauten Truck in den Wäldern von British Columbia
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
**EDITORS NOTE: We cannot use her surname**
If you go into the woods of British Columbia today you could be in for a big surprise.
You might just find parked up for the night a truly magical truck with a handcrafted house built on to its back.
The International 4800, a beast of a vehicle originally made for off-road utility work, has been reborn as a whimsical, wood-fired, off-grid sanctuary.
It took five years to create after it was bought in 2013 by a woman who made the project her labour of love.
“I called it The Ugly Truckling because I always loved the story of the ugly duckling,” says the creator of the fantasy mobile home who likes to be known simply as Kai.
“I was an awkward, weird kid. Honestly, I’m an awkward, weird adult. But like the duckling, the truck started off ugly, and it grew into something I think is secretly beautiful.”
From the outside, the house truck looks like something out of a Disney dream.
Cedar shake siding wraps the entire frame, salvaged century-old windows add soul and light, and a hand-built Dutch door with curved stained glass makes the entryway look like it belongs on a woodland fairy tale set.
“When I first moved in, it didn’t have electricity, running water, or plumbing. It was just a box on wheels. I slowly built everything around me,’ says Kai, who is in her thirties.
“Now, it has most modern amenities. It’s not finished, but it’s comfortable, and its mine.
“I made that door myself. I used old glass with air bubbles in it to mimic historic pub windows. I wanted it to feel alive, like a house that evolved over time, not just something an architect plonked down.”
Inside, every inch of the 200-square-foot interior is bursting with detail and character. There’s a round window that Kai also made by hand, after discovering that buying one would cost her a whopping £3 700 ($5 000).
“I thought, ‘No way,’ so I just taught myself how to build on *** Local Caption *
(c) Dukas -
DUK10163586_012
A Fairytale Home In The Woods: Das Aussteigerpaar Kai und Ben lebt in ihrem umgebauten Truck in den Wäldern von British Columbia
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
**EDITORS NOTE: We cannot use her surname**
If you go into the woods of British Columbia today you could be in for a big surprise.
You might just find parked up for the night a truly magical truck with a handcrafted house built on to its back.
The International 4800, a beast of a vehicle originally made for off-road utility work, has been reborn as a whimsical, wood-fired, off-grid sanctuary.
It took five years to create after it was bought in 2013 by a woman who made the project her labour of love.
“I called it The Ugly Truckling because I always loved the story of the ugly duckling,” says the creator of the fantasy mobile home who likes to be known simply as Kai.
“I was an awkward, weird kid. Honestly, I’m an awkward, weird adult. But like the duckling, the truck started off ugly, and it grew into something I think is secretly beautiful.”
From the outside, the house truck looks like something out of a Disney dream.
Cedar shake siding wraps the entire frame, salvaged century-old windows add soul and light, and a hand-built Dutch door with curved stained glass makes the entryway look like it belongs on a woodland fairy tale set.
“When I first moved in, it didn’t have electricity, running water, or plumbing. It was just a box on wheels. I slowly built everything around me,’ says Kai, who is in her thirties.
“Now, it has most modern amenities. It’s not finished, but it’s comfortable, and its mine.
“I made that door myself. I used old glass with air bubbles in it to mimic historic pub windows. I wanted it to feel alive, like a house that evolved over time, not just something an architect plonked down.”
Inside, every inch of the 200-square-foot interior is bursting with detail and character. There’s a round window that Kai also made by hand, after discovering that buying one would cost her a whopping £3 700 ($5 000).
“I thought, ‘No way,’ so I just taught myself how to build on *** Local Caption *
(c) Dukas -
DUK10163586_014
A Fairytale Home In The Woods: Das Aussteigerpaar Kai und Ben lebt in ihrem umgebauten Truck in den Wäldern von British Columbia
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
**EDITORS NOTE: We cannot use her surname**
If you go into the woods of British Columbia today you could be in for a big surprise.
You might just find parked up for the night a truly magical truck with a handcrafted house built on to its back.
The International 4800, a beast of a vehicle originally made for off-road utility work, has been reborn as a whimsical, wood-fired, off-grid sanctuary.
It took five years to create after it was bought in 2013 by a woman who made the project her labour of love.
“I called it The Ugly Truckling because I always loved the story of the ugly duckling,” says the creator of the fantasy mobile home who likes to be known simply as Kai.
“I was an awkward, weird kid. Honestly, I’m an awkward, weird adult. But like the duckling, the truck started off ugly, and it grew into something I think is secretly beautiful.”
From the outside, the house truck looks like something out of a Disney dream.
Cedar shake siding wraps the entire frame, salvaged century-old windows add soul and light, and a hand-built Dutch door with curved stained glass makes the entryway look like it belongs on a woodland fairy tale set.
“When I first moved in, it didn’t have electricity, running water, or plumbing. It was just a box on wheels. I slowly built everything around me,’ says Kai, who is in her thirties.
“Now, it has most modern amenities. It’s not finished, but it’s comfortable, and its mine.
“I made that door myself. I used old glass with air bubbles in it to mimic historic pub windows. I wanted it to feel alive, like a house that evolved over time, not just something an architect plonked down.”
Inside, every inch of the 200-square-foot interior is bursting with detail and character. There’s a round window that Kai also made by hand, after discovering that buying one would cost her a whopping £3 700 ($5 000).
“I thought, ‘No way,’ so I just taught myself how to build on *** Local Caption *
(c) Dukas -
DUK10163586_008
A Fairytale Home In The Woods: Das Aussteigerpaar Kai und Ben lebt in ihrem umgebauten Truck in den Wäldern von British Columbia
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
**EDITORS NOTE: We cannot use her surname**
If you go into the woods of British Columbia today you could be in for a big surprise.
You might just find parked up for the night a truly magical truck with a handcrafted house built on to its back.
The International 4800, a beast of a vehicle originally made for off-road utility work, has been reborn as a whimsical, wood-fired, off-grid sanctuary.
It took five years to create after it was bought in 2013 by a woman who made the project her labour of love.
“I called it The Ugly Truckling because I always loved the story of the ugly duckling,” says the creator of the fantasy mobile home who likes to be known simply as Kai.
“I was an awkward, weird kid. Honestly, I’m an awkward, weird adult. But like the duckling, the truck started off ugly, and it grew into something I think is secretly beautiful.”
From the outside, the house truck looks like something out of a Disney dream.
Cedar shake siding wraps the entire frame, salvaged century-old windows add soul and light, and a hand-built Dutch door with curved stained glass makes the entryway look like it belongs on a woodland fairy tale set.
“When I first moved in, it didn’t have electricity, running water, or plumbing. It was just a box on wheels. I slowly built everything around me,’ says Kai, who is in her thirties.
“Now, it has most modern amenities. It’s not finished, but it’s comfortable, and its mine.
“I made that door myself. I used old glass with air bubbles in it to mimic historic pub windows. I wanted it to feel alive, like a house that evolved over time, not just something an architect plonked down.”
Inside, every inch of the 200-square-foot interior is bursting with detail and character. There’s a round window that Kai also made by hand, after discovering that buying one would cost her a whopping £3 700 ($5 000).
“I thought, ‘No way,’ so I just taught myself how to build on *** Local Caption *
(c) Dukas -
DUK10163586_005
A Fairytale Home In The Woods: Das Aussteigerpaar Kai und Ben lebt in ihrem umgebauten Truck in den Wäldern von British Columbia
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
**EDITORS NOTE: We cannot use her surname**
If you go into the woods of British Columbia today you could be in for a big surprise.
You might just find parked up for the night a truly magical truck with a handcrafted house built on to its back.
The International 4800, a beast of a vehicle originally made for off-road utility work, has been reborn as a whimsical, wood-fired, off-grid sanctuary.
It took five years to create after it was bought in 2013 by a woman who made the project her labour of love.
“I called it The Ugly Truckling because I always loved the story of the ugly duckling,” says the creator of the fantasy mobile home who likes to be known simply as Kai.
“I was an awkward, weird kid. Honestly, I’m an awkward, weird adult. But like the duckling, the truck started off ugly, and it grew into something I think is secretly beautiful.”
From the outside, the house truck looks like something out of a Disney dream.
Cedar shake siding wraps the entire frame, salvaged century-old windows add soul and light, and a hand-built Dutch door with curved stained glass makes the entryway look like it belongs on a woodland fairy tale set.
“When I first moved in, it didn’t have electricity, running water, or plumbing. It was just a box on wheels. I slowly built everything around me,’ says Kai, who is in her thirties.
“Now, it has most modern amenities. It’s not finished, but it’s comfortable, and its mine.
“I made that door myself. I used old glass with air bubbles in it to mimic historic pub windows. I wanted it to feel alive, like a house that evolved over time, not just something an architect plonked down.”
Inside, every inch of the 200-square-foot interior is bursting with detail and character. There’s a round window that Kai also made by hand, after discovering that buying one would cost her a whopping £3 700 ($5 000).
“I thought, ‘No way,’ so I just taught myself how to build on *** Local Caption *
(c) Dukas -
DUK10163586_004
A Fairytale Home In The Woods: Das Aussteigerpaar Kai und Ben lebt in ihrem umgebauten Truck in den Wäldern von British Columbia
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
**EDITORS NOTE: We cannot use her surname**
If you go into the woods of British Columbia today you could be in for a big surprise.
You might just find parked up for the night a truly magical truck with a handcrafted house built on to its back.
The International 4800, a beast of a vehicle originally made for off-road utility work, has been reborn as a whimsical, wood-fired, off-grid sanctuary.
It took five years to create after it was bought in 2013 by a woman who made the project her labour of love.
“I called it The Ugly Truckling because I always loved the story of the ugly duckling,” says the creator of the fantasy mobile home who likes to be known simply as Kai.
“I was an awkward, weird kid. Honestly, I’m an awkward, weird adult. But like the duckling, the truck started off ugly, and it grew into something I think is secretly beautiful.”
From the outside, the house truck looks like something out of a Disney dream.
Cedar shake siding wraps the entire frame, salvaged century-old windows add soul and light, and a hand-built Dutch door with curved stained glass makes the entryway look like it belongs on a woodland fairy tale set.
“When I first moved in, it didn’t have electricity, running water, or plumbing. It was just a box on wheels. I slowly built everything around me,’ says Kai, who is in her thirties.
“Now, it has most modern amenities. It’s not finished, but it’s comfortable, and its mine.
“I made that door myself. I used old glass with air bubbles in it to mimic historic pub windows. I wanted it to feel alive, like a house that evolved over time, not just something an architect plonked down.”
Inside, every inch of the 200-square-foot interior is bursting with detail and character. There’s a round window that Kai also made by hand, after discovering that buying one would cost her a whopping £3 700 ($5 000).
“I thought, ‘No way,’ so I just taught myself how to build on *** Local Caption *
(c) Dukas -
DUK10163586_013
A Fairytale Home In The Woods: Das Aussteigerpaar Kai und Ben lebt in ihrem umgebauten Truck in den Wäldern von British Columbia
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Andrea Caknis
**EDITORS NOTE: We cannot use her surname**
If you go into the woods of British Columbia today you could be in for a big surprise.
You might just find parked up for the night a truly magical truck with a handcrafted house built on to its back.
The International 4800, a beast of a vehicle originally made for off-road utility work, has been reborn as a whimsical, wood-fired, off-grid sanctuary.
It took five years to create after it was bought in 2013 by a woman who made the project her labour of love.
“I called it The Ugly Truckling because I always loved the story of the ugly duckling,” says the creator of the fantasy mobile home who likes to be known simply as Kai.
“I was an awkward, weird kid. Honestly, I’m an awkward, weird adult. But like the duckling, the truck started off ugly, and it grew into something I think is secretly beautiful.”
From the outside, the house truck looks like something out of a Disney dream.
Cedar shake siding wraps the entire frame, salvaged century-old windows add soul and light, and a hand-built Dutch door with curved stained glass makes the entryway look like it belongs on a woodland fairy tale set.
“When I first moved in, it didn’t have electricity, running water, or plumbing. It was just a box on wheels. I slowly built everything around me,’ says Kai, who is in her thirties.
“Now, it has most modern amenities. It’s not finished, but it’s comfortable, and its mine.
“I made that door myself. I used old glass with air bubbles in it to mimic historic pub windows. I wanted it to feel alive, like a house that evolved over time, not just something an architect plonked down.”
Inside, every inch of the 200-square-foot interior is bursting with detail and character. There’s a round window that Kai also made by hand, after discovering that buying one would cost her a whopping £3 700 ($5 000).
“I thought, ‘No way,’ so I just taught myself how to build on *** Local Caption *
(c) Dukas -
DUK10163226_007
Herzerkrankung von den Doktoren übersehen: Dan Cipriani konnte dank seiner neuen Smartwatch selbst eine supraventrikuläre Tachykardie diagnostizieren
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Sarah Ingram
The symptoms were scary. Dan Cipriani’s heart rate would speed up and he would feel lightheaded and dizzy - sometimes while exercising and at others while he was at rest.
Dan first went to the doctor when he was 13 with sudden random onset palpitations, but he left the GP’s office without answers.
Dan went back another five times over the years and always left with doctors scratching their heads.
He was given a battery of tests; wearing a heart monitor for days on end or booking into hospital for echocardiograms and ECGs - but nothing was conclusive.
Meanwhile, the episodes kept happening. Dan’s heart rate would reach 220 BPM while sitting down; when it should have been between 60 and 100.
The 32-year-old banking director from London has always been fitness-mad.
He has run countless sub-three hour marathons, three ultra marathons including one 100-mile race and has competed in an Ironman.
He could not be healthier, but each time he would exercise, he would experience these troubling episodes.
‘They happened probably once a fortnight but then became more frequent over the last two years and would last longer, perhaps up to a minute,’ he says.
‘They also always happened during intense exercise. I did an Ironman triathlon and the London Marathon, and my heart rate jumped up to 220 beats a minute during the races, which was scary. I’ve had different diagnoses from stress with my work to potentially low blood sugar’, he explains.
Then, a year ago, he was finally given a diagnosis. After an event where his heart raced constantly at 220BPM, he decided he’d had enough and went back to his cardiologist and demanded answers.
‘My doctor told me to buy a Kardia monitor, which is an ECG device you attach to your phone so you can track a cardiac event when it happens. The day after I bought it, I had an episode and caught it with the monitor, sent it to my cardiologist, and he knew immediately what it w *** Lo
(c) Dukas -
DUK10163226_004
Herzerkrankung von den Doktoren übersehen: Dan Cipriani konnte dank seiner neuen Smartwatch selbst eine supraventrikuläre Tachykardie diagnostizieren
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Sarah Ingram
The symptoms were scary. Dan Cipriani’s heart rate would speed up and he would feel lightheaded and dizzy - sometimes while exercising and at others while he was at rest.
Dan first went to the doctor when he was 13 with sudden random onset palpitations, but he left the GP’s office without answers.
Dan went back another five times over the years and always left with doctors scratching their heads.
He was given a battery of tests; wearing a heart monitor for days on end or booking into hospital for echocardiograms and ECGs - but nothing was conclusive.
Meanwhile, the episodes kept happening. Dan’s heart rate would reach 220 BPM while sitting down; when it should have been between 60 and 100.
The 32-year-old banking director from London has always been fitness-mad.
He has run countless sub-three hour marathons, three ultra marathons including one 100-mile race and has competed in an Ironman.
He could not be healthier, but each time he would exercise, he would experience these troubling episodes.
‘They happened probably once a fortnight but then became more frequent over the last two years and would last longer, perhaps up to a minute,’ he says.
‘They also always happened during intense exercise. I did an Ironman triathlon and the London Marathon, and my heart rate jumped up to 220 beats a minute during the races, which was scary. I’ve had different diagnoses from stress with my work to potentially low blood sugar’, he explains.
Then, a year ago, he was finally given a diagnosis. After an event where his heart raced constantly at 220BPM, he decided he’d had enough and went back to his cardiologist and demanded answers.
‘My doctor told me to buy a Kardia monitor, which is an ECG device you attach to your phone so you can track a cardiac event when it happens. The day after I bought it, I had an episode and caught it with the monitor, sent it to my cardiologist, and he knew immediately what it w *** Lo
(c) Dukas -
DUK10163226_006
Herzerkrankung von den Doktoren übersehen: Dan Cipriani konnte dank seiner neuen Smartwatch selbst eine supraventrikuläre Tachykardie diagnostizieren
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Sarah Ingram
The symptoms were scary. Dan Cipriani’s heart rate would speed up and he would feel lightheaded and dizzy - sometimes while exercising and at others while he was at rest.
Dan first went to the doctor when he was 13 with sudden random onset palpitations, but he left the GP’s office without answers.
Dan went back another five times over the years and always left with doctors scratching their heads.
He was given a battery of tests; wearing a heart monitor for days on end or booking into hospital for echocardiograms and ECGs - but nothing was conclusive.
Meanwhile, the episodes kept happening. Dan’s heart rate would reach 220 BPM while sitting down; when it should have been between 60 and 100.
The 32-year-old banking director from London has always been fitness-mad.
He has run countless sub-three hour marathons, three ultra marathons including one 100-mile race and has competed in an Ironman.
He could not be healthier, but each time he would exercise, he would experience these troubling episodes.
‘They happened probably once a fortnight but then became more frequent over the last two years and would last longer, perhaps up to a minute,’ he says.
‘They also always happened during intense exercise. I did an Ironman triathlon and the London Marathon, and my heart rate jumped up to 220 beats a minute during the races, which was scary. I’ve had different diagnoses from stress with my work to potentially low blood sugar’, he explains.
Then, a year ago, he was finally given a diagnosis. After an event where his heart raced constantly at 220BPM, he decided he’d had enough and went back to his cardiologist and demanded answers.
‘My doctor told me to buy a Kardia monitor, which is an ECG device you attach to your phone so you can track a cardiac event when it happens. The day after I bought it, I had an episode and caught it with the monitor, sent it to my cardiologist, and he knew immediately what it w *** Lo
(c) Dukas -
DUK10163226_003
Herzerkrankung von den Doktoren übersehen: Dan Cipriani konnte dank seiner neuen Smartwatch selbst eine supraventrikuläre Tachykardie diagnostizieren
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Sarah Ingram
The symptoms were scary. Dan Cipriani’s heart rate would speed up and he would feel lightheaded and dizzy - sometimes while exercising and at others while he was at rest.
Dan first went to the doctor when he was 13 with sudden random onset palpitations, but he left the GP’s office without answers.
Dan went back another five times over the years and always left with doctors scratching their heads.
He was given a battery of tests; wearing a heart monitor for days on end or booking into hospital for echocardiograms and ECGs - but nothing was conclusive.
Meanwhile, the episodes kept happening. Dan’s heart rate would reach 220 BPM while sitting down; when it should have been between 60 and 100.
The 32-year-old banking director from London has always been fitness-mad.
He has run countless sub-three hour marathons, three ultra marathons including one 100-mile race and has competed in an Ironman.
He could not be healthier, but each time he would exercise, he would experience these troubling episodes.
‘They happened probably once a fortnight but then became more frequent over the last two years and would last longer, perhaps up to a minute,’ he says.
‘They also always happened during intense exercise. I did an Ironman triathlon and the London Marathon, and my heart rate jumped up to 220 beats a minute during the races, which was scary. I’ve had different diagnoses from stress with my work to potentially low blood sugar’, he explains.
Then, a year ago, he was finally given a diagnosis. After an event where his heart raced constantly at 220BPM, he decided he’d had enough and went back to his cardiologist and demanded answers.
‘My doctor told me to buy a Kardia monitor, which is an ECG device you attach to your phone so you can track a cardiac event when it happens. The day after I bought it, I had an episode and caught it with the monitor, sent it to my cardiologist, and he knew immediately what it w *** Lo
(c) Dukas -
DUK10163226_002
Herzerkrankung von den Doktoren übersehen: Dan Cipriani konnte dank seiner neuen Smartwatch selbst eine supraventrikuläre Tachykardie diagnostizieren
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Sarah Ingram
The symptoms were scary. Dan Cipriani’s heart rate would speed up and he would feel lightheaded and dizzy - sometimes while exercising and at others while he was at rest.
Dan first went to the doctor when he was 13 with sudden random onset palpitations, but he left the GP’s office without answers.
Dan went back another five times over the years and always left with doctors scratching their heads.
He was given a battery of tests; wearing a heart monitor for days on end or booking into hospital for echocardiograms and ECGs - but nothing was conclusive.
Meanwhile, the episodes kept happening. Dan’s heart rate would reach 220 BPM while sitting down; when it should have been between 60 and 100.
The 32-year-old banking director from London has always been fitness-mad.
He has run countless sub-three hour marathons, three ultra marathons including one 100-mile race and has competed in an Ironman.
He could not be healthier, but each time he would exercise, he would experience these troubling episodes.
‘They happened probably once a fortnight but then became more frequent over the last two years and would last longer, perhaps up to a minute,’ he says.
‘They also always happened during intense exercise. I did an Ironman triathlon and the London Marathon, and my heart rate jumped up to 220 beats a minute during the races, which was scary. I’ve had different diagnoses from stress with my work to potentially low blood sugar’, he explains.
Then, a year ago, he was finally given a diagnosis. After an event where his heart raced constantly at 220BPM, he decided he’d had enough and went back to his cardiologist and demanded answers.
‘My doctor told me to buy a Kardia monitor, which is an ECG device you attach to your phone so you can track a cardiac event when it happens. The day after I bought it, I had an episode and caught it with the monitor, sent it to my cardiologist, and he knew immediately what it w *** Lo
(c) Dukas -
DUK10163226_001
Herzerkrankung von den Doktoren übersehen: Dan Cipriani konnte dank seiner neuen Smartwatch selbst eine supraventrikuläre Tachykardie diagnostizieren
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Sarah Ingram
The symptoms were scary. Dan Cipriani’s heart rate would speed up and he would feel lightheaded and dizzy - sometimes while exercising and at others while he was at rest.
Dan first went to the doctor when he was 13 with sudden random onset palpitations, but he left the GP’s office without answers.
Dan went back another five times over the years and always left with doctors scratching their heads.
He was given a battery of tests; wearing a heart monitor for days on end or booking into hospital for echocardiograms and ECGs - but nothing was conclusive.
Meanwhile, the episodes kept happening. Dan’s heart rate would reach 220 BPM while sitting down; when it should have been between 60 and 100.
The 32-year-old banking director from London has always been fitness-mad.
He has run countless sub-three hour marathons, three ultra marathons including one 100-mile race and has competed in an Ironman.
He could not be healthier, but each time he would exercise, he would experience these troubling episodes.
‘They happened probably once a fortnight but then became more frequent over the last two years and would last longer, perhaps up to a minute,’ he says.
‘They also always happened during intense exercise. I did an Ironman triathlon and the London Marathon, and my heart rate jumped up to 220 beats a minute during the races, which was scary. I’ve had different diagnoses from stress with my work to potentially low blood sugar’, he explains.
Then, a year ago, he was finally given a diagnosis. After an event where his heart raced constantly at 220BPM, he decided he’d had enough and went back to his cardiologist and demanded answers.
‘My doctor told me to buy a Kardia monitor, which is an ECG device you attach to your phone so you can track a cardiac event when it happens. The day after I bought it, I had an episode and caught it with the monitor, sent it to my cardiologist, and he knew immediately what it w *** Lo
(c) Dukas -
DUK10163226_005
Herzerkrankung von den Doktoren übersehen: Dan Cipriani konnte dank seiner neuen Smartwatch selbst eine supraventrikuläre Tachykardie diagnostizieren
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Sarah Ingram
The symptoms were scary. Dan Cipriani’s heart rate would speed up and he would feel lightheaded and dizzy - sometimes while exercising and at others while he was at rest.
Dan first went to the doctor when he was 13 with sudden random onset palpitations, but he left the GP’s office without answers.
Dan went back another five times over the years and always left with doctors scratching their heads.
He was given a battery of tests; wearing a heart monitor for days on end or booking into hospital for echocardiograms and ECGs - but nothing was conclusive.
Meanwhile, the episodes kept happening. Dan’s heart rate would reach 220 BPM while sitting down; when it should have been between 60 and 100.
The 32-year-old banking director from London has always been fitness-mad.
He has run countless sub-three hour marathons, three ultra marathons including one 100-mile race and has competed in an Ironman.
He could not be healthier, but each time he would exercise, he would experience these troubling episodes.
‘They happened probably once a fortnight but then became more frequent over the last two years and would last longer, perhaps up to a minute,’ he says.
‘They also always happened during intense exercise. I did an Ironman triathlon and the London Marathon, and my heart rate jumped up to 220 beats a minute during the races, which was scary. I’ve had different diagnoses from stress with my work to potentially low blood sugar’, he explains.
Then, a year ago, he was finally given a diagnosis. After an event where his heart raced constantly at 220BPM, he decided he’d had enough and went back to his cardiologist and demanded answers.
‘My doctor told me to buy a Kardia monitor, which is an ECG device you attach to your phone so you can track a cardiac event when it happens. The day after I bought it, I had an episode and caught it with the monitor, sent it to my cardiologist, and he knew immediately what it w *** Lo
(c) Dukas -
DUK10163096_002
Emma hat 'nen Blindenhund: Emma Norman aus Biggleswade hat die ZSD Augenerkrankung und ist auf ihren Assistenzhund Archie angewiesen
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Deborah Cicurel
She was just a normal kid, running around with her friends and having fun dancing - until a devastating diagnosis.
When Emma Norman was six her parents noticed her squinting at the TV but they didn’t think too much of it.
However, Emma, now 33, would soon find out that she had Cone Rod Dystrophy and would eventually go blind.
Emma, a Pilates and meditation breathwork instructor from London, living in Biggleswade, Bedfordshire, believes the stereotypes around blindness made accepting her diagnosis even harder — and she wants to challenge outdated ideas around sight loss.
“Life before my diagnosis felt pretty normal,” she remembers.
“I was just like any other kid—running around with friends, dancing around to my favourite TV shows and records. I even skipped crawling and went straight to walking, and I was reading and talking from a very young age, so nobody noticed anything unusual.
“To me, everything seemed fine because that was just my normal. It wasn’t until my parents started picking up on little things—like me squinting at the TV or struggling to see animals at the zoo when they pointed them out—that they became curious.
“At first, they thought I was just being cheeky, pretending not to see things, but when I kept squinting at the TV, they decided to take me to the optician. They assumed I was probably just short-sighted and needed glasses.
“In my early years at school, I only needed to sit closer to the board, but beyond that, I didn’t notice anything different. I guess what I saw—how I saw—was just my normal.
“When I first started squinting, my parents thought I probably just needed glasses for short-sightedness, like the other kids in my class.
“The optician gave me my first pair of multi-coloured glasses in the meantime while they arranged for the doctors to refer me to Moorfields Eye Hospital, as they could tell something more was going on.
“After getting the gl *** Local Caption ***
(c) Dukas -
DUK10163096_013
Emma hat 'nen Blindenhund: Emma Norman aus Biggleswade hat die ZSD Augenerkrankung und ist auf ihren Assistenzhund Archie angewiesen
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Deborah Cicurel
She was just a normal kid, running around with her friends and having fun dancing - until a devastating diagnosis.
When Emma Norman was six her parents noticed her squinting at the TV but they didn’t think too much of it.
However, Emma, now 33, would soon find out that she had Cone Rod Dystrophy and would eventually go blind.
Emma, a Pilates and meditation breathwork instructor from London, living in Biggleswade, Bedfordshire, believes the stereotypes around blindness made accepting her diagnosis even harder — and she wants to challenge outdated ideas around sight loss.
“Life before my diagnosis felt pretty normal,” she remembers.
“I was just like any other kid—running around with friends, dancing around to my favourite TV shows and records. I even skipped crawling and went straight to walking, and I was reading and talking from a very young age, so nobody noticed anything unusual.
“To me, everything seemed fine because that was just my normal. It wasn’t until my parents started picking up on little things—like me squinting at the TV or struggling to see animals at the zoo when they pointed them out—that they became curious.
“At first, they thought I was just being cheeky, pretending not to see things, but when I kept squinting at the TV, they decided to take me to the optician. They assumed I was probably just short-sighted and needed glasses.
“In my early years at school, I only needed to sit closer to the board, but beyond that, I didn’t notice anything different. I guess what I saw—how I saw—was just my normal.
“When I first started squinting, my parents thought I probably just needed glasses for short-sightedness, like the other kids in my class.
“The optician gave me my first pair of multi-coloured glasses in the meantime while they arranged for the doctors to refer me to Moorfields Eye Hospital, as they could tell something more was going on.
“After getting the gl *** Local Caption ***
(c) Dukas -
DUK10163096_011
Emma hat 'nen Blindenhund: Emma Norman aus Biggleswade hat die ZSD Augenerkrankung und ist auf ihren Assistenzhund Archie angewiesen
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Deborah Cicurel
She was just a normal kid, running around with her friends and having fun dancing - until a devastating diagnosis.
When Emma Norman was six her parents noticed her squinting at the TV but they didn’t think too much of it.
However, Emma, now 33, would soon find out that she had Cone Rod Dystrophy and would eventually go blind.
Emma, a Pilates and meditation breathwork instructor from London, living in Biggleswade, Bedfordshire, believes the stereotypes around blindness made accepting her diagnosis even harder — and she wants to challenge outdated ideas around sight loss.
“Life before my diagnosis felt pretty normal,” she remembers.
“I was just like any other kid—running around with friends, dancing around to my favourite TV shows and records. I even skipped crawling and went straight to walking, and I was reading and talking from a very young age, so nobody noticed anything unusual.
“To me, everything seemed fine because that was just my normal. It wasn’t until my parents started picking up on little things—like me squinting at the TV or struggling to see animals at the zoo when they pointed them out—that they became curious.
“At first, they thought I was just being cheeky, pretending not to see things, but when I kept squinting at the TV, they decided to take me to the optician. They assumed I was probably just short-sighted and needed glasses.
“In my early years at school, I only needed to sit closer to the board, but beyond that, I didn’t notice anything different. I guess what I saw—how I saw—was just my normal.
“When I first started squinting, my parents thought I probably just needed glasses for short-sightedness, like the other kids in my class.
“The optician gave me my first pair of multi-coloured glasses in the meantime while they arranged for the doctors to refer me to Moorfields Eye Hospital, as they could tell something more was going on.
“After getting the gl *** Local Caption ***
(c) Dukas -
DUK10163096_003
Emma hat 'nen Blindenhund: Emma Norman aus Biggleswade hat die ZSD Augenerkrankung und ist auf ihren Assistenzhund Archie angewiesen
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Deborah Cicurel
She was just a normal kid, running around with her friends and having fun dancing - until a devastating diagnosis.
When Emma Norman was six her parents noticed her squinting at the TV but they didn’t think too much of it.
However, Emma, now 33, would soon find out that she had Cone Rod Dystrophy and would eventually go blind.
Emma, a Pilates and meditation breathwork instructor from London, living in Biggleswade, Bedfordshire, believes the stereotypes around blindness made accepting her diagnosis even harder — and she wants to challenge outdated ideas around sight loss.
“Life before my diagnosis felt pretty normal,” she remembers.
“I was just like any other kid—running around with friends, dancing around to my favourite TV shows and records. I even skipped crawling and went straight to walking, and I was reading and talking from a very young age, so nobody noticed anything unusual.
“To me, everything seemed fine because that was just my normal. It wasn’t until my parents started picking up on little things—like me squinting at the TV or struggling to see animals at the zoo when they pointed them out—that they became curious.
“At first, they thought I was just being cheeky, pretending not to see things, but when I kept squinting at the TV, they decided to take me to the optician. They assumed I was probably just short-sighted and needed glasses.
“In my early years at school, I only needed to sit closer to the board, but beyond that, I didn’t notice anything different. I guess what I saw—how I saw—was just my normal.
“When I first started squinting, my parents thought I probably just needed glasses for short-sightedness, like the other kids in my class.
“The optician gave me my first pair of multi-coloured glasses in the meantime while they arranged for the doctors to refer me to Moorfields Eye Hospital, as they could tell something more was going on.
“After getting the gl *** Local Caption ***
(c) Dukas -
DUK10163096_001
Emma hat 'nen Blindenhund: Emma Norman aus Biggleswade hat die ZSD Augenerkrankung und ist auf ihren Assistenzhund Archie angewiesen
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Deborah Cicurel
She was just a normal kid, running around with her friends and having fun dancing - until a devastating diagnosis.
When Emma Norman was six her parents noticed her squinting at the TV but they didn’t think too much of it.
However, Emma, now 33, would soon find out that she had Cone Rod Dystrophy and would eventually go blind.
Emma, a Pilates and meditation breathwork instructor from London, living in Biggleswade, Bedfordshire, believes the stereotypes around blindness made accepting her diagnosis even harder — and she wants to challenge outdated ideas around sight loss.
“Life before my diagnosis felt pretty normal,” she remembers.
“I was just like any other kid—running around with friends, dancing around to my favourite TV shows and records. I even skipped crawling and went straight to walking, and I was reading and talking from a very young age, so nobody noticed anything unusual.
“To me, everything seemed fine because that was just my normal. It wasn’t until my parents started picking up on little things—like me squinting at the TV or struggling to see animals at the zoo when they pointed them out—that they became curious.
“At first, they thought I was just being cheeky, pretending not to see things, but when I kept squinting at the TV, they decided to take me to the optician. They assumed I was probably just short-sighted and needed glasses.
“In my early years at school, I only needed to sit closer to the board, but beyond that, I didn’t notice anything different. I guess what I saw—how I saw—was just my normal.
“When I first started squinting, my parents thought I probably just needed glasses for short-sightedness, like the other kids in my class.
“The optician gave me my first pair of multi-coloured glasses in the meantime while they arranged for the doctors to refer me to Moorfields Eye Hospital, as they could tell something more was going on.
“After getting the gl *** Local Caption ***
(c) Dukas -
DUK10163096_010
Emma hat 'nen Blindenhund: Emma Norman aus Biggleswade hat die ZSD Augenerkrankung und ist auf ihren Assistenzhund Archie angewiesen
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Deborah Cicurel
She was just a normal kid, running around with her friends and having fun dancing - until a devastating diagnosis.
When Emma Norman was six her parents noticed her squinting at the TV but they didn’t think too much of it.
However, Emma, now 33, would soon find out that she had Cone Rod Dystrophy and would eventually go blind.
Emma, a Pilates and meditation breathwork instructor from London, living in Biggleswade, Bedfordshire, believes the stereotypes around blindness made accepting her diagnosis even harder — and she wants to challenge outdated ideas around sight loss.
“Life before my diagnosis felt pretty normal,” she remembers.
“I was just like any other kid—running around with friends, dancing around to my favourite TV shows and records. I even skipped crawling and went straight to walking, and I was reading and talking from a very young age, so nobody noticed anything unusual.
“To me, everything seemed fine because that was just my normal. It wasn’t until my parents started picking up on little things—like me squinting at the TV or struggling to see animals at the zoo when they pointed them out—that they became curious.
“At first, they thought I was just being cheeky, pretending not to see things, but when I kept squinting at the TV, they decided to take me to the optician. They assumed I was probably just short-sighted and needed glasses.
“In my early years at school, I only needed to sit closer to the board, but beyond that, I didn’t notice anything different. I guess what I saw—how I saw—was just my normal.
“When I first started squinting, my parents thought I probably just needed glasses for short-sightedness, like the other kids in my class.
“The optician gave me my first pair of multi-coloured glasses in the meantime while they arranged for the doctors to refer me to Moorfields Eye Hospital, as they could tell something more was going on.
“After getting the gl *** Local Caption ***
(c) Dukas -
DUK10163096_008
Emma hat 'nen Blindenhund: Emma Norman aus Biggleswade hat die ZSD Augenerkrankung und ist auf ihren Assistenzhund Archie angewiesen
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Deborah Cicurel
She was just a normal kid, running around with her friends and having fun dancing - until a devastating diagnosis.
When Emma Norman was six her parents noticed her squinting at the TV but they didn’t think too much of it.
However, Emma, now 33, would soon find out that she had Cone Rod Dystrophy and would eventually go blind.
Emma, a Pilates and meditation breathwork instructor from London, living in Biggleswade, Bedfordshire, believes the stereotypes around blindness made accepting her diagnosis even harder — and she wants to challenge outdated ideas around sight loss.
“Life before my diagnosis felt pretty normal,” she remembers.
“I was just like any other kid—running around with friends, dancing around to my favourite TV shows and records. I even skipped crawling and went straight to walking, and I was reading and talking from a very young age, so nobody noticed anything unusual.
“To me, everything seemed fine because that was just my normal. It wasn’t until my parents started picking up on little things—like me squinting at the TV or struggling to see animals at the zoo when they pointed them out—that they became curious.
“At first, they thought I was just being cheeky, pretending not to see things, but when I kept squinting at the TV, they decided to take me to the optician. They assumed I was probably just short-sighted and needed glasses.
“In my early years at school, I only needed to sit closer to the board, but beyond that, I didn’t notice anything different. I guess what I saw—how I saw—was just my normal.
“When I first started squinting, my parents thought I probably just needed glasses for short-sightedness, like the other kids in my class.
“The optician gave me my first pair of multi-coloured glasses in the meantime while they arranged for the doctors to refer me to Moorfields Eye Hospital, as they could tell something more was going on.
“After getting the gl *** Local Caption ***
(c) Dukas -
DUK10163096_007
Emma hat 'nen Blindenhund: Emma Norman aus Biggleswade hat die ZSD Augenerkrankung und ist auf ihren Assistenzhund Archie angewiesen
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Deborah Cicurel
She was just a normal kid, running around with her friends and having fun dancing - until a devastating diagnosis.
When Emma Norman was six her parents noticed her squinting at the TV but they didn’t think too much of it.
However, Emma, now 33, would soon find out that she had Cone Rod Dystrophy and would eventually go blind.
Emma, a Pilates and meditation breathwork instructor from London, living in Biggleswade, Bedfordshire, believes the stereotypes around blindness made accepting her diagnosis even harder — and she wants to challenge outdated ideas around sight loss.
“Life before my diagnosis felt pretty normal,” she remembers.
“I was just like any other kid—running around with friends, dancing around to my favourite TV shows and records. I even skipped crawling and went straight to walking, and I was reading and talking from a very young age, so nobody noticed anything unusual.
“To me, everything seemed fine because that was just my normal. It wasn’t until my parents started picking up on little things—like me squinting at the TV or struggling to see animals at the zoo when they pointed them out—that they became curious.
“At first, they thought I was just being cheeky, pretending not to see things, but when I kept squinting at the TV, they decided to take me to the optician. They assumed I was probably just short-sighted and needed glasses.
“In my early years at school, I only needed to sit closer to the board, but beyond that, I didn’t notice anything different. I guess what I saw—how I saw—was just my normal.
“When I first started squinting, my parents thought I probably just needed glasses for short-sightedness, like the other kids in my class.
“The optician gave me my first pair of multi-coloured glasses in the meantime while they arranged for the doctors to refer me to Moorfields Eye Hospital, as they could tell something more was going on.
“After getting the gl *** Local Caption ***
(c) Dukas -
DUK10163096_006
Emma hat 'nen Blindenhund: Emma Norman aus Biggleswade hat die ZSD Augenerkrankung und ist auf ihren Assistenzhund Archie angewiesen
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Deborah Cicurel
She was just a normal kid, running around with her friends and having fun dancing - until a devastating diagnosis.
When Emma Norman was six her parents noticed her squinting at the TV but they didn’t think too much of it.
However, Emma, now 33, would soon find out that she had Cone Rod Dystrophy and would eventually go blind.
Emma, a Pilates and meditation breathwork instructor from London, living in Biggleswade, Bedfordshire, believes the stereotypes around blindness made accepting her diagnosis even harder — and she wants to challenge outdated ideas around sight loss.
“Life before my diagnosis felt pretty normal,” she remembers.
“I was just like any other kid—running around with friends, dancing around to my favourite TV shows and records. I even skipped crawling and went straight to walking, and I was reading and talking from a very young age, so nobody noticed anything unusual.
“To me, everything seemed fine because that was just my normal. It wasn’t until my parents started picking up on little things—like me squinting at the TV or struggling to see animals at the zoo when they pointed them out—that they became curious.
“At first, they thought I was just being cheeky, pretending not to see things, but when I kept squinting at the TV, they decided to take me to the optician. They assumed I was probably just short-sighted and needed glasses.
“In my early years at school, I only needed to sit closer to the board, but beyond that, I didn’t notice anything different. I guess what I saw—how I saw—was just my normal.
“When I first started squinting, my parents thought I probably just needed glasses for short-sightedness, like the other kids in my class.
“The optician gave me my first pair of multi-coloured glasses in the meantime while they arranged for the doctors to refer me to Moorfields Eye Hospital, as they could tell something more was going on.
“After getting the gl *** Local Caption ***
(c) Dukas -
DUK10163096_009
Emma hat 'nen Blindenhund: Emma Norman aus Biggleswade hat die ZSD Augenerkrankung und ist auf ihren Assistenzhund Archie angewiesen
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Deborah Cicurel
She was just a normal kid, running around with her friends and having fun dancing - until a devastating diagnosis.
When Emma Norman was six her parents noticed her squinting at the TV but they didn’t think too much of it.
However, Emma, now 33, would soon find out that she had Cone Rod Dystrophy and would eventually go blind.
Emma, a Pilates and meditation breathwork instructor from London, living in Biggleswade, Bedfordshire, believes the stereotypes around blindness made accepting her diagnosis even harder — and she wants to challenge outdated ideas around sight loss.
“Life before my diagnosis felt pretty normal,” she remembers.
“I was just like any other kid—running around with friends, dancing around to my favourite TV shows and records. I even skipped crawling and went straight to walking, and I was reading and talking from a very young age, so nobody noticed anything unusual.
“To me, everything seemed fine because that was just my normal. It wasn’t until my parents started picking up on little things—like me squinting at the TV or struggling to see animals at the zoo when they pointed them out—that they became curious.
“At first, they thought I was just being cheeky, pretending not to see things, but when I kept squinting at the TV, they decided to take me to the optician. They assumed I was probably just short-sighted and needed glasses.
“In my early years at school, I only needed to sit closer to the board, but beyond that, I didn’t notice anything different. I guess what I saw—how I saw—was just my normal.
“When I first started squinting, my parents thought I probably just needed glasses for short-sightedness, like the other kids in my class.
“The optician gave me my first pair of multi-coloured glasses in the meantime while they arranged for the doctors to refer me to Moorfields Eye Hospital, as they could tell something more was going on.
“After getting the gl *** Local Caption ***
(c) Dukas -
DUK10163096_004
Emma hat 'nen Blindenhund: Emma Norman aus Biggleswade hat die ZSD Augenerkrankung und ist auf ihren Assistenzhund Archie angewiesen
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Deborah Cicurel
She was just a normal kid, running around with her friends and having fun dancing - until a devastating diagnosis.
When Emma Norman was six her parents noticed her squinting at the TV but they didn’t think too much of it.
However, Emma, now 33, would soon find out that she had Cone Rod Dystrophy and would eventually go blind.
Emma, a Pilates and meditation breathwork instructor from London, living in Biggleswade, Bedfordshire, believes the stereotypes around blindness made accepting her diagnosis even harder — and she wants to challenge outdated ideas around sight loss.
“Life before my diagnosis felt pretty normal,” she remembers.
“I was just like any other kid—running around with friends, dancing around to my favourite TV shows and records. I even skipped crawling and went straight to walking, and I was reading and talking from a very young age, so nobody noticed anything unusual.
“To me, everything seemed fine because that was just my normal. It wasn’t until my parents started picking up on little things—like me squinting at the TV or struggling to see animals at the zoo when they pointed them out—that they became curious.
“At first, they thought I was just being cheeky, pretending not to see things, but when I kept squinting at the TV, they decided to take me to the optician. They assumed I was probably just short-sighted and needed glasses.
“In my early years at school, I only needed to sit closer to the board, but beyond that, I didn’t notice anything different. I guess what I saw—how I saw—was just my normal.
“When I first started squinting, my parents thought I probably just needed glasses for short-sightedness, like the other kids in my class.
“The optician gave me my first pair of multi-coloured glasses in the meantime while they arranged for the doctors to refer me to Moorfields Eye Hospital, as they could tell something more was going on.
“After getting the gl *** Local Caption ***
(c) Dukas -
DUK10163096_012
Emma hat 'nen Blindenhund: Emma Norman aus Biggleswade hat die ZSD Augenerkrankung und ist auf ihren Assistenzhund Archie angewiesen
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Deborah Cicurel
She was just a normal kid, running around with her friends and having fun dancing - until a devastating diagnosis.
When Emma Norman was six her parents noticed her squinting at the TV but they didn’t think too much of it.
However, Emma, now 33, would soon find out that she had Cone Rod Dystrophy and would eventually go blind.
Emma, a Pilates and meditation breathwork instructor from London, living in Biggleswade, Bedfordshire, believes the stereotypes around blindness made accepting her diagnosis even harder — and she wants to challenge outdated ideas around sight loss.
“Life before my diagnosis felt pretty normal,” she remembers.
“I was just like any other kid—running around with friends, dancing around to my favourite TV shows and records. I even skipped crawling and went straight to walking, and I was reading and talking from a very young age, so nobody noticed anything unusual.
“To me, everything seemed fine because that was just my normal. It wasn’t until my parents started picking up on little things—like me squinting at the TV or struggling to see animals at the zoo when they pointed them out—that they became curious.
“At first, they thought I was just being cheeky, pretending not to see things, but when I kept squinting at the TV, they decided to take me to the optician. They assumed I was probably just short-sighted and needed glasses.
“In my early years at school, I only needed to sit closer to the board, but beyond that, I didn’t notice anything different. I guess what I saw—how I saw—was just my normal.
“When I first started squinting, my parents thought I probably just needed glasses for short-sightedness, like the other kids in my class.
“The optician gave me my first pair of multi-coloured glasses in the meantime while they arranged for the doctors to refer me to Moorfields Eye Hospital, as they could tell something more was going on.
“After getting the gl *** Local Caption ***
(c) Dukas -
DUK10163096_005
Emma hat 'nen Blindenhund: Emma Norman aus Biggleswade hat die ZSD Augenerkrankung und ist auf ihren Assistenzhund Archie angewiesen
SONDERKONDITIONEN: Satzpreis!
WORDS BYLINE: Deborah Cicurel
She was just a normal kid, running around with her friends and having fun dancing - until a devastating diagnosis.
When Emma Norman was six her parents noticed her squinting at the TV but they didn’t think too much of it.
However, Emma, now 33, would soon find out that she had Cone Rod Dystrophy and would eventually go blind.
Emma, a Pilates and meditation breathwork instructor from London, living in Biggleswade, Bedfordshire, believes the stereotypes around blindness made accepting her diagnosis even harder — and she wants to challenge outdated ideas around sight loss.
“Life before my diagnosis felt pretty normal,” she remembers.
“I was just like any other kid—running around with friends, dancing around to my favourite TV shows and records. I even skipped crawling and went straight to walking, and I was reading and talking from a very young age, so nobody noticed anything unusual.
“To me, everything seemed fine because that was just my normal. It wasn’t until my parents started picking up on little things—like me squinting at the TV or struggling to see animals at the zoo when they pointed them out—that they became curious.
“At first, they thought I was just being cheeky, pretending not to see things, but when I kept squinting at the TV, they decided to take me to the optician. They assumed I was probably just short-sighted and needed glasses.
“In my early years at school, I only needed to sit closer to the board, but beyond that, I didn’t notice anything different. I guess what I saw—how I saw—was just my normal.
“When I first started squinting, my parents thought I probably just needed glasses for short-sightedness, like the other kids in my class.
“The optician gave me my first pair of multi-coloured glasses in the meantime while they arranged for the doctors to refer me to Moorfields Eye Hospital, as they could tell something more was going on.
“After getting the gl *** Local Caption ***
(c) Dukas