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DUKAS_183057425_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Italian politician Antonio Di Pietro attends the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso (born in Schio on December 1, 1995, and died in Asolo on October 5, 2024) is an Italian activist affected by progeria. His family, together with a group of friends, founds the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005, with the aim of sharing and disseminating knowledge and promoting scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057423_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Sammy Basso's parents, Laura Lucchin and Amerigo Basso, attend the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso, born in Schio on December 1, 1995, and passed away in Asolo on October 5, 2024, is an Italian activist affected by progeria. His family, together with a group of friends, founds the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005 to share and disseminate knowledge and promote scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057530_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Posters dedicated to Sammy Basso are in the school during the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso (born in Schio on December 1, 1995, and died in Asolo on October 5, 2024) is an Italian activist affected by progeria. His family, together with a group of friends, founded the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005, with the aim of sharing and disseminating knowledge and promoting scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057478_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Sammy Basso's parents, Laura Lucchin and Amerigo Basso, attend the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso, born in Schio on December 1, 1995, and passed away in Asolo on October 5, 2024, is an Italian activist affected by progeria. His family, together with a group of friends, founds the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005 to share and disseminate knowledge and promote scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057477_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Sammy Basso's parents, Laura Lucchin and Amerigo Basso, attend the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso, born in Schio on December 1, 1995, and passed away in Asolo on October 5, 2024, is an Italian activist affected by progeria. His family, together with a group of friends, founds the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005 to share and disseminate knowledge and promote scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057474_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Sammy Basso's parents, Laura Lucchin and Amerigo Basso, attend the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso, born in Schio on December 1, 1995, and passed away in Asolo on October 5, 2024, is an Italian activist affected by progeria. His family, together with a group of friends, founds the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005 to share and disseminate knowledge and promote scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057465_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
A commemorative banner is displayed during the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso (born in Schio on December 1, 1995, and died in Asolo on October 5, 2024) is an Italian activist affected by progeria. His family, together with a group of friends, founds the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005, aiming to share and disseminate knowledge and promote scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057464_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Sammy Basso's parents, Laura Lucchin and Amerigo Basso, attend the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso, born in Schio on December 1, 1995, and passed away in Asolo on October 5, 2024, is an Italian activist affected by progeria. His family, together with a group of friends, founds the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005 to share and disseminate knowledge and promote scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057455_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Sammy Basso's father, Amerigo Basso, attends the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso, born in Schio on December 1, 1995, and passed away in Asolo on October 5, 2024, is an Italian activist affected by progeria. His family, together with a group of friends, founds the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005 to share and disseminate knowledge and promote scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057453_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Sammy Basso's parents, Laura Lucchin and Amerigo Basso, visit the school during the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso, born in Schio on December 1, 1995, and passed away in Asolo on October 5, 2024, is an Italian activist affected by progeria. His family, together with a group of friends, founds the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005, with the aim of sharing and disseminating knowledge and promoting scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057452_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Sammy Basso's mother, Laura Lucchin, attends the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso, born in Schio on December 1, 1995, and passed away in Asolo on October 5, 2024, is an Italian activist affected by progeria. His family, together with a group of friends, founds the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005, aiming to share and disseminate knowledge and promote scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057451_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Sammy Basso's parents, Laura Lucchin and Amerigo Basso, visit the school during the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso, born in Schio on December 1, 1995, and passed away in Asolo on October 5, 2024, is an Italian activist affected by progeria. His family, together with a group of friends, founds the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005, with the aim of sharing and disseminating knowledge and promoting scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057446_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Sammy Basso's father, Amerigo Basso, attends the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso, born in Schio on December 1, 1995, and passed away in Asolo on October 5, 2024, is an Italian activist affected by progeria. His family, together with a group of friends, founds the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005 to share and disseminate knowledge and promote scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057445_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Sammy Basso's parents, Laura Lucchin and Amerigo Basso, visit the school during the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso, born in Schio on December 1, 1995, and passed away in Asolo on October 5, 2024, is an Italian activist affected by progeria. His family, together with a group of friends, founds the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005, with the aim of sharing and disseminating knowledge and promoting scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057444_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Sammy Basso's mother, Laura Lucchin, attends the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso, born in Schio on December 1, 1995, and passed away in Asolo on October 5, 2024, is an Italian activist affected by progeria. His family, together with a group of friends, founds the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005, aiming to share and disseminate knowledge and promote scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057443_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Sammy Basso's parents, Laura Lucchin and Amerigo Basso, attend the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso, born in Schio on December 1, 1995, and passed away in Asolo on October 5, 2024, is an Italian activist affected by progeria. His family, together with a group of friends, founds the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005 to share and disseminate knowledge and promote scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057441_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Sammy Basso's parents, Laura Lucchin and Amerigo Basso, visit the school during the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso, born in Schio on December 1, 1995, and passed away in Asolo on October 5, 2024, is an Italian activist affected by progeria. His family, together with a group of friends, founds the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005, with the aim of sharing and disseminating knowledge and promoting scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057434_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Minister of Education and Merit Giuseppe Valditara connects via video call during the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso (born in Schio on December 1, 1995, and died in Asolo on October 5, 2024) is an Italian activist affected by progeria. His family, together with a group of friends, founds the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005, aiming to share and disseminate knowledge and promote scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057433_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Maria Chimisso of the regional school office attends the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso (born in Schio on December 1, 1995, and died in Asolo on October 5, 2024) is an Italian activist affected by progeria. His family, together with a group of friends, founds the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005, with the aim of sharing and disseminating knowledge and promoting scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057432_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Sammy Basso's mother, Laura Lucchin, attends the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso, born in Schio on December 1, 1995, and passed away in Asolo on October 5, 2024, is an Italian activist affected by progeria. His family, together with a group of friends, founds the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005, aiming to share and disseminate knowledge and promote scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057431_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Member of the European Parliament Aldo Patriciello attends the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso, born in Schio on December 1, 1995, and passed away in Asolo on October 5, 2024, was an Italian activist affected by progeria. His family, together with a group of friends, founded the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005 to share and disseminate knowledge and promote scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_183057429_NUR
Naming Of The First School After Sammy Basso - Comprehensive Institute Of Montenero Di Bisaccia
Posters dedicated to Sammy Basso are in the school during the naming of the first school after Sammy Basso in Montenero di Bisaccia, Italy, on March 31, 2025. Sammy Basso (born in Schio on December 1, 1995, and died in Asolo on October 5, 2024) is an Italian activist affected by progeria. His family, together with a group of friends, founded the Italian Progeria Sammy Basso Association (A.I.Pro.Sa.B.) in 2005, with the aim of sharing and disseminating knowledge and promoting scientific research on the rare genetic disease. (Photo by Marco Zac/NurPhoto) -
DUKAS_135937425_EYE
My brilliant brother has Down’s syndrome. Is it wrong to fear getting pregnant myself?
Dunja Batarilo: I’ve always wanted to start a family, but I’m paralysed by the idea of having a disabled child - and diagnostic tests feel like a betrayal.
‘I had only one option: to step into the unknown. Without a map.’
Dunja Batarilo photographed in Berlin.
© Eva Tuerbl / Guardian / eyevine
Contact eyevine for more information about using this image:
T: +44 (0) 20 8709 8709
E: info@eyevine.com
http://www.eyevine.com
(FOTO: DUKAS/EYEVINE)
© Guardian / eyevine. All Rights Reserved. -
DUKAS_135937423_EYE
My brilliant brother has Down’s syndrome. Is it wrong to fear getting pregnant myself?
Dunja Batarilo: I’ve always wanted to start a family, but I’m paralysed by the idea of having a disabled child - and diagnostic tests feel like a betrayal.
‘I had only one option: to step into the unknown. Without a map.’
Dunja Batarilo photographed in Berlin.
© Eva Tuerbl / Guardian / eyevine
Contact eyevine for more information about using this image:
T: +44 (0) 20 8709 8709
E: info@eyevine.com
http://www.eyevine.com
(FOTO: DUKAS/EYEVINE)
© Guardian / eyevine. All Rights Reserved. -
DUKAS_135937422_EYE
My brilliant brother has Down’s syndrome. Is it wrong to fear getting pregnant myself?
Dunja Batarilo: I’ve always wanted to start a family, but I’m paralysed by the idea of having a disabled child - and diagnostic tests feel like a betrayal.
‘I had only one option: to step into the unknown. Without a map.’
Dunja Batarilo photographed in Berlin.
© Eva Tuerbl / Guardian / eyevine
Contact eyevine for more information about using this image:
T: +44 (0) 20 8709 8709
E: info@eyevine.com
http://www.eyevine.com
(FOTO: DUKAS/EYEVINE)
© Guardian / eyevine. All Rights Reserved. -
DUKAS_135937424_EYE
My brilliant brother has Down’s syndrome. Is it wrong to fear getting pregnant myself?
Dunja Batarilo: I’ve always wanted to start a family, but I’m paralysed by the idea of having a disabled child - and diagnostic tests feel like a betrayal.
‘I had only one option: to step into the unknown. Without a map.’
Dunja Batarilo photographed in Berlin.
© Eva Tuerbl / Guardian / eyevine
Contact eyevine for more information about using this image:
T: +44 (0) 20 8709 8709
E: info@eyevine.com
http://www.eyevine.com
(FOTO: DUKAS/EYEVINE)
© Guardian / eyevine. All Rights Reserved. -
DUK10075194_098
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli eats rice pudding while her mother clips her nails at their home in Mexico City, Mexico on July 18, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272369
(c) Dukas -
DUK10075194_097
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli grabs the door of the refrigerator before her mother can lock it shut at their home in Mexico City, Mexico on July 18, 2017. Because of Citlalli’s condition, her mother keeps the refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272374
(c) Dukas -
DUK10075194_092
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
A lock installed on the refrigerator at Citlalli’s home in Mexico City, Mexico on July 18, 2017. Because of her condition, her mother keeps the refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272375
(c) Dukas -
DUK10075194_079
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli’s mother applies a healing cream to Citlalli’s wounds at their home in Mexico City, Mexico on July 18, 2017. Many people with Prader-Willi Syndrome (PWS) frequently engage in severe skin-picking behavior, often causing open wounds and sores that can become infected. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272395
(c) Dukas -
DUK10075194_078
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli grabs the door of the refrigerator before her mother can lock it shut at their home in Mexico City, Mexico on July 18, 2017. Because of Citlalli’s condition, her mother keeps the refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272373
(c) Dukas -
DUK10075194_072
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli is photographed outside her front door in Mexico City, Mexico on July 18, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272372
(c) Dukas -
DUK10075194_060
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli is photographed outside her front door in Mexico City, Mexico on July 18, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272371
(c) Dukas -
DUK10075194_051
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli wears a medical ID necklace etched with her name, phone number, blood type and status as a diabetic in Mexico City, Mexico on July 18, 2017. Citlalli has been wearing the necklace at her mother’s behest since being diagnosed with diabetes six years ago, in case she gets lost or is involved in an accident. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272380
(c) Dukas -
DUK10075194_031
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli stands in front of the door to her home in Mexico City, Mexico on July 18, 2017. When she is excited, she rubs her palms together. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272394
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DUK10075194_025
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli grabs the door of the refrigerator before her mother can lock it shut at their home in Mexico City, Mexico on July 18, 2017. Because of Citlalli’s condition, her mother keeps the refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272376
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DUK10075194_006
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli kisses her cat at her home in Mexico City, Mexico on July 18, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272398
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DUK10075194_091
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli eats an ice cream on the streets of the Historic Center in Mexico City, Mexico on July 15, 2017. Citlalli spends one day a week with her grandmother, so her mother can visit her boyfriend. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272360
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DUK10075194_074
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli buys an ice cream at a McDonald’s on the Zocalo main square in Mexico City, Mexico on July 15, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272356
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DUK10075194_073
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli dances with Danzantes in the Zocalo main square in Mexico City, Mexico on July 15, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272355
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DUK10075194_071
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli dances with Danzantes in the Zocalo main square in Mexico City, Mexico on July 15, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272364
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DUK10075194_070
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli eats an ice cream with her grandmother, Cristina Zarate, in the Historic Center in Mexico City, Mexico on July 15, 2017. Citlalli spends one day a week with her grandmother, so her mother can visit her boyfriend. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272361
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DUK10075194_064
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli kisses a photo of her deceased grandfather on her grandmother’s cellphone at the Metropolitan Cathedral of the Assumption in Mexico City, Mexico on July 15, 2017. Citlalli spends one day a week with her grandmother, so her mother can visit her boyfriend. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272352
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DUK10075194_057
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli embraces a man wearing an Iron Man suit on the streets of the Historic Center in Mexico City, Mexico on July 15, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272362
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DUK10075194_053
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli eats an ice cream with her grandmother, Cristina Zarate, in the Historic Center in Mexico City, Mexico on July 15, 2017. Citlalli spends one day a week with her grandmother, so her mother can visit her boyfriend. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272357
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DUK10075194_017
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli dances with Danzantes in the Zocalo main square in Mexico City, Mexico on July 15, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272366
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DUK10075194_046
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli and her mother photographed at their home in Mexico City, Mexico on June 1, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272661
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DUK10075194_045
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli grabs the door of the refrigerator before her mother can lock it shut at their home in Mexico City, Mexico on June 1, 2017. Because of Citlalli’s condition, her mother keeps the refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272667
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DUK10075194_024
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli looks through the bars of the locked kitchen door at her home in Mexico City, Mexico on June 1, 2017. Because of her condition, her mother keeps the refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272669
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DUK10075194_022
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli grabs the door of the refrigerator before her mother can lock it shut at their home in Mexico City, Mexico on June 1, 2017. Because of Citlalli’s condition, her mother keeps the refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272668
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