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  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_081
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    An annual meeting organized by Fundación María José, the Prader-Willi association of Mexico, in Mexico City, Mexico on April 9, 2017. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272519
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_069
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Diego Emilio Lozada, a 23-month-old Mexican boy, attends an annual meeting organized by Fundación María José, the Prader-Willi association of Mexico, in Mexico City, Mexico on April 9, 2017. Diego weighs 13.5 kilograms (29.7 pounds) and stands 89 centimeters tall (2 feet 11 inches). He has been taking growth hormones since being diagnosed with Prader-Willi syndrome at nine months old. He eats five meals a day and follows a strict sugar- and wheat-free diet. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272517
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_062
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Diego Emilio Lozada, a 23-month-old Mexican boy, attends an annual meeting organized by Fundación María José, the Prader-Willi association of Mexico, in Mexico City, Mexico on April 9, 2017. Diego weighs 13.5 kilograms (29.7 pounds) and stands 89 centimeters tall (2 feet 11 inches). He has been taking growth hormones since being diagnosed with Prader-Willi syndrome at nine months old. He eats five meals a day and follows a strict sugar- and wheat-free diet. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272515
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_049
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    An annual meeting organized by Fundación María José, the Prader-Willi association of Mexico, in Mexico City, Mexico on April 9, 2017. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272518
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_023
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Diego Emilio Lozada, a 23-month-old Mexican boy, attends an annual meeting organized by Fundación María José, the Prader-Willi association of Mexico, in Mexico City, Mexico on April 9, 2017. Diego weighs 13.5 kilograms (29.7 pounds) and stands 89 centimeters tall (2 feet 11 inches). He has been taking growth hormones since being diagnosed with Prader-Willi syndrome at nine months old. He eats five meals a day and follows a strict sugar- and wheat-free diet. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272514
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_102
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita eats a snack served by her sister Olga at their home in Mexico City, Mexico on April 5, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272506
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_087
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita eats a snack served by her sister Olga at their home in Mexico City, Mexico on April 5, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272509
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_065
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita does needlepoint with her sister Olga at their home in Mexico City, Mexico on April 5, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272510
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_050
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita practices Qi Gong with her teacher in Mexico City, Mexico on April 5, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272504
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_048
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita practices Qi Gong with her teacher in Mexico City, Mexico on April 5, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272503
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_047
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita practices Qi Gong with her teacher in Mexico City, Mexico on April 5, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272505
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_034
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita looks at the snack her sister Olga has just served at their home in Mexico City, Mexico on April 5, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272508
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_003
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita eats a snack served by her sister Olga at their home in Mexico City, Mexico on April 5, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272507
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_105
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita and her boyfriend Jorge walk on the rooftop terrace of her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272500
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_100
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita’s sister Olga helps her apply lipstick at their home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272476
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_096
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita and her boyfriend Jorge rest on the rooftop terrace of her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272498
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_086
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita kisses her boyfriend Jorge while her sister Olga cuts Jorge’s birthday cake at her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272496
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_082
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita embraces her boyfriend Jorge, who has come to celebrate his 34th birthday at her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272483
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_067
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita embraces her boyfriend Jorge, who has come to celebrate his 34th birthday at her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272485
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_058
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita eats breakfast with her sister Olga at their home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272475
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_042
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita embraces her boyfriend Jorge during a family lunch to celebrate his 34th birthday at her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272493
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_035
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita embraces her boyfriend Jorge during a family lunch to celebrate his 34th birthday at her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272495
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_033
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita embraces her boyfriend Jorge, who has come to celebrate his 34th birthday at her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272489
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_026
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita eats breakfast with her sister Olga at their home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272473
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_015
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita embraces her boyfriend Jorge, who has come to celebrate his 34th birthday at her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272484
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_002
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Lupita stands at the door of her house anxiously waiting for her boyfriend Jorge to arrive in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272479
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_099
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli eats the popcorn she had just grabbed from the refrigerator before her mother could lock it shut at their home in Mexico City, Mexico on March 29, 2017.
    Because of her condition, her mother keeps their refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272466

    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_095
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli brushes her teeth at her home in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272432
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_090
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli at a public swimming pool in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272438
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_085
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli at a public swimming pool in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272436
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_084
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli sunbathes at a public swimming pool in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272443
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_080
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli eats popcorn while her mother braids her hair at their home in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272430
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_076
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli and her mother prepare to go swimming at a public pool in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272435
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_068
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli takes a nap at her home in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272469
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_066
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli showers after swimming at a public pool in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272448
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_056
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli swims with her mother at a public pool in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272440
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_039
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli at a public swimming pool in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272439
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_027
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli showers after swimming at a public pool in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272451
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_021
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli gets upset and clutches a pot of popcorn that she grabbed from the refrigerator before her mother locked it shut at their home in Mexico City, Mexico on March 29, 2017. Because of her condition, her mother keeps the refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272459
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_016
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli gets upset and clutches a pot of popcorn that she grabbed from the refrigerator before her mother locked it shut at their home in Mexico City, Mexico on March 29, 2017. Because of her condition, her mother keeps the refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272454
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_013
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli brushes her teeth at her home in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272434
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_009
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli eats popcorn while her mother braids her hair at their home in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272431
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_001
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli swims with her mother at a public pool in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272441
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_106
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli and her mother spend a Sunday afternoon at Chapultepec Park, also known as Bosque de Chapultepec, in Mexico City, Mexico on March 26, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272424
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_063
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli and her mother spend a Sunday afternoon at Chapultepec Park, also known as Bosque de Chapultepec, in Mexico City, Mexico on March 26, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272423
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_059
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli’s mother feeds her cotton candy at Chapultepec Park, also known as Bosque de Chapultepec, in Mexico City, Mexico on March 26, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272422
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_037
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli eats lunch with her mother at Chapultepec Park, also known as Bosque de Chapultepec, in Mexico City, Mexico on March 26, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272429
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_030
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli spends a Sunday afternoon with her mother at Chapultepec Park, also known as Bosque de Chapultepec, in Mexico City, Mexico on March 26, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272426
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_028
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli and her mother spend a Sunday afternoon at Chapultepec Park, also known as Bosque de Chapultepec, in Mexico City, Mexico on March 26, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272419
    (c) Dukas

     

  • REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    DUK10075194_014
    REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
    Citlalli puts on her shoes at her home in Mexico City, Mexico on March 26, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272416
    (c) Dukas

     

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