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DUK10105604_016
SCHICKSALE - Als 5-jährige schon 90 Knochenbrüche: Die kleine Hadley leidet an der Glasknochenkrankheit
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Als 5-jährige schon 90 Knochenbrüche: Die kleine Hadley leidet an der Glasknochenkrankheit/ 2018 *** Collect of Hadley Larsen, 5. Hadley suffers from osteogenesis imperfecta, also known as Brittle Bone Syndrome, making her incredibly FRAGILE.. See story SWNYsurf.A ‘china doll’ five-year-old who has suffered 90 broken bones in her short lifetime overcame her disease to go surfing with her dad. Hadley Larson, five, has osteogenesis imperfecta, also known as Brittle Bone Disease, and has been in and out of hospital since she was born in 2012.A lack of the protein collagen means Hadley's bones are so brittle they can shatter in an instant, and a light fall can leave her with serious injuries. So mom Kendra Larsen, 36, says she was stunned when Hadley asked her if she could try to surf with dad Eric Larsen, 38, on a daytrip to Ririe Reservoir, Idaho, on July 21. *** Local Caption *** / action press
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