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DUK10146829_003
SCHICKSALE - Sucht nach einer OP-Finanzierung: Amy Stewart leidet an der sehr seltenen und angeborenen Kleidokranialen Dysplasie
Amy after a jaw operation (PA Real Life) *** Bride-to-be with agonising "one in a million" condition meaning she was born
with no collarbone needs private surgery to walk down the aisle pain free
By Jack Clover, PA Real Life
A bride-to-be with a "one in a million" condition that saw her born with no collarbone and
whose spine is agonisingly twisted like the letter C - making it impossible to carry a child - is
desperate for private surgery so she can walk down the aisle pain free and start a family.
Born with cleidocranial dysostosis (CCD) - a birth defect affecting teeth and bones present in
one in every million people, according to medical experts, Amy Stewart, 27, has been in
agony since falling down some stairs and fracturing her spine in August 2020.
Diagnosed with CCD after being born with a wide forehead, an open skull at the top, no
collarbone and three rows of teeth, she flourished despite countless operations and being
bullied at school - landing a job with the emergency services and falling in love.
But Amy, of Milton Keynes, Buckinghamshire, now fears that unless she can raise £38,000
towards private treatment, she will still be in agony when she marries her fiancé, Matthew
Woollard, 38, a fellow emergency services worker, on 1 June, 2023, and that they will never
be able to have children.
Also suffering with kyphoscoliosis - a spine that curves to the side and forwards or
backwards at the same time - she said: "My spine is much weaker than most people, so when
I fell down a flight of stairs not only did I fracture it, but my kyphoscoliosis has deteriorated
rapidly, reducing my quality of life significantly."
Seeking private help when her NHS doctors did not see surgery on her spine as an option,
according to Amy, she was offered a lifeline by a private specialist who can perform a spinal
fusion as soon as January 2022 - making the prohibitive factor the cost of around £40,000 for
surgery and aftercare.
Now Amy has launched ***
(c) Dukas