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DUKAS_132937898_EYE
‘I took a DNA test and found a new family’: the drama and joy of meeting long-lost relatives
ÔI took a DNA test and found a new familyÕ: the drama and joy of meeting long-lost relatives. After years of searching, DNA tests, social media and old-fashioned tenacity have played crucial roles in reuniting fractured families. Karen Riley Preston, business owner.
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DUK10075194_098
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli eats rice pudding while her mother clips her nails at their home in Mexico City, Mexico on July 18, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272369
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DUK10075194_097
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli grabs the door of the refrigerator before her mother can lock it shut at their home in Mexico City, Mexico on July 18, 2017. Because of Citlalli’s condition, her mother keeps the refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272374
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DUK10075194_092
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
A lock installed on the refrigerator at Citlalli’s home in Mexico City, Mexico on July 18, 2017. Because of her condition, her mother keeps the refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272375
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DUK10075194_079
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli’s mother applies a healing cream to Citlalli’s wounds at their home in Mexico City, Mexico on July 18, 2017. Many people with Prader-Willi Syndrome (PWS) frequently engage in severe skin-picking behavior, often causing open wounds and sores that can become infected. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272395
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DUK10075194_078
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli grabs the door of the refrigerator before her mother can lock it shut at their home in Mexico City, Mexico on July 18, 2017. Because of Citlalli’s condition, her mother keeps the refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272373
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DUK10075194_072
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli is photographed outside her front door in Mexico City, Mexico on July 18, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272372
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DUK10075194_060
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli is photographed outside her front door in Mexico City, Mexico on July 18, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272371
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DUK10075194_051
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli wears a medical ID necklace etched with her name, phone number, blood type and status as a diabetic in Mexico City, Mexico on July 18, 2017. Citlalli has been wearing the necklace at her mother’s behest since being diagnosed with diabetes six years ago, in case she gets lost or is involved in an accident. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272380
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DUK10075194_031
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli stands in front of the door to her home in Mexico City, Mexico on July 18, 2017. When she is excited, she rubs her palms together. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272394
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DUK10075194_025
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli grabs the door of the refrigerator before her mother can lock it shut at their home in Mexico City, Mexico on July 18, 2017. Because of Citlalli’s condition, her mother keeps the refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272376
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DUK10075194_006
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli kisses her cat at her home in Mexico City, Mexico on July 18, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272398
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DUK10075194_091
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli eats an ice cream on the streets of the Historic Center in Mexico City, Mexico on July 15, 2017. Citlalli spends one day a week with her grandmother, so her mother can visit her boyfriend. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272360
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DUK10075194_074
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli buys an ice cream at a McDonald’s on the Zocalo main square in Mexico City, Mexico on July 15, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272356
(c) Dukas -
DUK10075194_073
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli dances with Danzantes in the Zocalo main square in Mexico City, Mexico on July 15, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272355
(c) Dukas -
DUK10075194_071
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli dances with Danzantes in the Zocalo main square in Mexico City, Mexico on July 15, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272364
(c) Dukas -
DUK10075194_070
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli eats an ice cream with her grandmother, Cristina Zarate, in the Historic Center in Mexico City, Mexico on July 15, 2017. Citlalli spends one day a week with her grandmother, so her mother can visit her boyfriend. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272361
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DUK10075194_064
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli kisses a photo of her deceased grandfather on her grandmother’s cellphone at the Metropolitan Cathedral of the Assumption in Mexico City, Mexico on July 15, 2017. Citlalli spends one day a week with her grandmother, so her mother can visit her boyfriend. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272352
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DUK10075194_057
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli embraces a man wearing an Iron Man suit on the streets of the Historic Center in Mexico City, Mexico on July 15, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272362
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DUK10075194_053
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli eats an ice cream with her grandmother, Cristina Zarate, in the Historic Center in Mexico City, Mexico on July 15, 2017. Citlalli spends one day a week with her grandmother, so her mother can visit her boyfriend. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272357
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DUK10075194_017
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli dances with Danzantes in the Zocalo main square in Mexico City, Mexico on July 15, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272366
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DUK10075194_046
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli and her mother photographed at their home in Mexico City, Mexico on June 1, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272661
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DUK10075194_045
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli grabs the door of the refrigerator before her mother can lock it shut at their home in Mexico City, Mexico on June 1, 2017. Because of Citlalli’s condition, her mother keeps the refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272667
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DUK10075194_024
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli looks through the bars of the locked kitchen door at her home in Mexico City, Mexico on June 1, 2017. Because of her condition, her mother keeps the refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272669
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DUK10075194_022
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli grabs the door of the refrigerator before her mother can lock it shut at their home in Mexico City, Mexico on June 1, 2017. Because of Citlalli’s condition, her mother keeps the refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272668
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DUK10075194_036
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge is prepped to undergo a polysomnographic examination at the Salvador Zubirán National Institute of Health Sciences and Nutrition in Mexico City, Mexico on May 31, 2017. Polysomnography (PSG), a type of sleep study, is a test used to diagnose sleep disorders. Sleep disturbance is common among patients with Prader-Willi syndrome, independent of age and weight. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272652
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DUK10075194_012
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge lies on a hospital bed during a polysomnographic examination at the Salvador Zubirán National Institute of Health Sciences and Nutrition in Mexico City, Mexico on May 31, 2017. Polysomnography (PSG), a type of sleep study, is a test used to diagnose sleep disorders. Sleep disturbance is common among patients with Prader-Willi syndrome independent of age and weight. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272648
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DUK10075194_008
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge is prepped to undergo a polysomnographic examination at the Salvador Zubirán National Institute of Health Sciences and Nutrition in Mexico City, Mexico on May 31, 2017. Polysomnography (PSG), a type of sleep study, is a test used to diagnose sleep disorders. Sleep disturbance is common among patients with Prader-Willi syndrome, independent of age and weight. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272638
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DUK10075194_005
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge lies on a hospital bed during a polysomnographic examination at the Salvador Zubirán National Institute of Health Sciences and Nutrition in Mexico City, Mexico on May 31, 2017. Polysomnography (PSG), a type of sleep study, is a test used to diagnose sleep disorders. Sleep disturbance is common among patients with Prader-Willi syndrome independent of age and weight. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272662
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DUK10075194_004
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge is prepped to undergo a polysomnographic examination at the Salvador Zubirán National Institute of Health Sciences and Nutrition in Mexico City, Mexico on May 31, 2017. Polysomnography (PSG), a type of sleep study, is a test used to diagnose sleep disorders. Sleep disturbance is common among patients with Prader-Willi syndrome, independent of age and weight. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272636
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DUK10065092_011
NEWS - Fall Charlie Gard: Ärzte dürfen Behandlung des todkranken Babys abbrechen
Mandatory Credit: Photo by Peter MacDiarmid/REX/Shutterstock (8842268h)
Connie Yates and Chris Gard leave The Royal Courts of Justice in London after an appeal court ruled that doctors can withdraw life-support treatment for their son, Charlie, who suffers from a rare genetic condition.
Appeal Court hearing on treatment of Charlie Gard, London, UK - 25 May 2017
Doctors at Great Ormond Street Hospital in London say eight-month-old Charlie should be left to die in dignity, but his parents have raised over GBP 1 million for specialist treatment in America
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DUK10065092_012
NEWS - Fall Charlie Gard: Ärzte dürfen Behandlung des todkranken Babys abbrechen
Mandatory Credit: Photo by Peter MacDiarmid/REX/Shutterstock (8836031a)
CONNIE YATES and CHRIS GARD are seen outside The Royal Courts of Justice in London where they are appealing an earlier court ruling that doctors can withdraw life-support treatment to their son, Charlie, who suffers from a rare genetic condition
Appeal Court hearing on treatment of Charlie Gard, London, UK - 23 May 2017
Doctors at Great Ormond Street Hospital in London say eight-month-old Charlie should be left to die in dignity, but his parents have raised over GBP 1 million for specialist treatment
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DUK10075194_123
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge drinks a Coca-Cola at a Sunday lunch at his family’s home in Puebla, Mexico on April 23, 2017. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272620
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DUK10075194_122
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge plays bocce ball in Puebla, Mexico on April 23, 2017. He is part of a sports team for people with disabilities. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272556
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DUK10075194_120
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge does stretches with his mother in Puebla, Mexico on April 23, 2017. He is part of a sports team for people with disabilities. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272539
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DUK10075194_119
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge works on a crossword with his sister-in-law at his home in Puebla, Mexico on April 23, 2017. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272632
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DUK10075194_118
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge injects himself with insulin during a Sunday lunch at his family’s home in Puebla, Mexico on April 23, 2017. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272629
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DUK10075194_117
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge works on a puzzle during a Sunday lunch at his family’s home in Puebla, Mexico on April 23, 2017. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272611
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DUK10075194_116
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge eats yogurt as he peels carrots for lunch at his home in Puebla, Mexico on April 23, 2017. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272590
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DUK10075194_115
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge looks at a plastic container of carrots at his home in Puebla, Mexico on April 23, 2017. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272583
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DUK10075194_114
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge displays his swimming medals in his bedroom in Puebla, Mexico on April 23, 2017. He is part of a sports team for people with disabilities. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272597
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DUK10075194_112
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge displays his swimming medals in his bedroom in Puebla, Mexico on April 23, 2017. He is part of a sports team for people with disabilities. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272604
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DUK10075194_111
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge plays bocce ball in Puebla, Mexico on April 23, 2017. He is part of a sports team for people with disabilities. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272560
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DUK10075194_110
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge displays his swimming medals in his bedroom in Puebla, Mexico on April 23, 2017. He is part of a sports team for people with disabilities. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272600
(c) Dukas -
DUK10075194_109
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge plays bocce ball in Puebla, Mexico on April 23, 2017. He is part of a sports team for people with disabilities. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272574
(c) Dukas -
DUK10075194_108
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge plays bocce ball in Puebla, Mexico on April 23, 2017. He is part of a sports team for people with disabilities. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272551
(c) Dukas -
DUK10075194_107
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge plays bocce ball in Puebla, Mexico on April 23, 2017. He is part of a sports team for people with disabilities. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272548
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DUK10075194_099
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli eats the popcorn she had just grabbed from the refrigerator before her mother could lock it shut at their home in Mexico City, Mexico on March 29, 2017.
Because of her condition, her mother keeps their refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272466
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DUK10075194_095
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli brushes her teeth at her home in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272432
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DUK10075194_090
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli at a public swimming pool in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272438
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